Resources » Women and girls with bleeding disorders | WFH World Congress 2022
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Year: 2022

Language: English

This resource is also available in: French Spanish

Author(s): World Federation of Hemophilia

Format: Congress recordings

Women and girls with bleeding disorders | WFH World Congress 2022

ADDITIONAL INFORMATION

In these sessions from the WFH 2022 World Congress, listen to Roseline d’Oiron, Angela Weyand, Robert Sidonio, Michelle Sholzberg, Baiba Ziemele, Dawn Rotellini, Paula James, Rezan Abdul-Kadir, Claire McLintock, Nathalie Roussel, Lena Volland, Silvina Grana, Nikole Scappe, Megan Adediran, Colleen Vallad-Hix, Silvana Moran, Miguel Escobar, Marlene Beijlevelt, Rajiv K. Pruthi and Dan Hart address current topics in women and girls with bleeding disorders.

The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.

In this session from the WFH 2022 World Congress, Roseline d’Oiron (France), Angela Weyand (United States), Robert Sidonio (United States), and Michelle Sholzberg (Canada), will discuss the current nomenclature recommendations for women with hemophilia and hemophilia carriers, as well as current knowledge of heavy menstrual bleeding, iron deficiencies, and musculoskeletal problems in women and girls with inherited bleeding disorders.

In this session from the WFH 2022 World Congress, Baiba Ziemele (Latvia), Dawn Rotellini (United States), Paula James (Canada), Rezan Abdul-Kadir (United Kingdom), and Claire McLintock (New Zealand), discuss that until we define what is “normal” bleeding in women and girls, we cannot accurately and in a timely manner, diagnose and treat women and girls with bleeding disorders.

In this session from the WFH 2022 World Congress, Baiba Ziemele (Latvia), Nathalie Roussel (Belgium), Lena Volland (United States), Silvina Grana (Argentina), and Nikole Scappe (United States), aim to enhance the knowledge of HCPs and WGBD about the various aspects of pain and the impact on the lives of women and girls. More specially, participants will learn about the different ways that pain impacts a WGBD and ways to mitigate the pain, and to understand how to live with the pain.

In this panel discussion from the WFH 2022 World Congress, Dawn Rotellini (United States), Baiba Ziemele (Latvia), Paula James (Canada), Megan Adediran (Nigeria), Colleen Vallad-Hix (United States), and Silvana Moran (Canada), discuss that until we define what is “normal” bleeding in women and girls, we cannot accurately and in a timely manner, diagnose and treat women and girls with bleeding disorders.

In this workshop from the WFH 2022 World Congress, Miguel Escobar (United States), Robert Sidonio (United States), Marlene Beijlevelt (Netherlands), Rajiv K. Pruthi (United States), and Dan Hart (United Kingdom), discuss three case studies:

  1. Girls or women in prophylaxis for von Willebrand disease
  2. Teenager with menorrhagia
  3. 30 years old or closer to menopause, uterine fibroids, hysterectomy

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