Year: 2022
Language: English
Author(s): World Federation of Hemophilia
Format: Congress recordings
In these sessions from the WFH 2022 World Congress, listen to Cesar Garrido, Glenn Pierce, Mark Kay, Alain Baumann, Dawn Rotellini, Cesar Garrido, Megan Adediran, Dejan Petrovic, Robed Amin, Declan Noone, Durhane Wong-Rieger, Yuyun Maryuningsih, Margarita Elizabeth Garcia Gonzalez, Assad Haffar, Kibet Shikuku, Barun Khakurel, Donna Coffin, Margareth Ozelo, Novie Amelia Chozie and Tahira Zafar address current topics in bleeding disorders.
The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.
The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.
In this plenary from the WFH 2022 World Congress, WFH President Cesar Garrido (Venezuela) presents the President’s award and addresses the bleeding disorders community.
In this plenary from the WFH 2022 World Congress, the Vice-President Medical, Glenn Pierce (United States), presents the WFH International Healthcare Volunteer Award and gave his address to the bleeding disorders community.
In this plenary from the WFH 2022 World Congress, Mark Kay (United States) provides a brief historical overview of the field, the progress in the recent clinical trials and what gene-based therapies that includes genome editing approaches on the horizon as well as what is still needed to eventually have a cure.
In this session from the WFH 2022 World Congress, Alain Baumann (Canada), Dawn Rotellini (United States), Cesar Garrido (Venezuela), Megan Adediran (Nigeria), Dejan Petrovic (Serbia), Robed Amin (Bangladesh), Declan Noone (Ireland), Durhane Wong-Rieger (Canada), Yuyun Maryuningsih (Switzerland) and Margarita Elizabeth Garcia Gonzalez (El Salvador) showcase the impact that WFH and our national member organizations have on improving access to care and treatment for people with bleeding disorders; and highlight what strategies, approaches and partnerships the WFH is pursuing to accelerate access globally.
In this session from the WFH 2022 World Congress, Glenn Pierce (United States), Assad Haffar (Canada), Kibet Shikuku (Kenya), and Barun Khakurel (Nepal) highlight the outcome of these donations and the direct benefits reflected on the patients treated with these donations and their families. It will also show how these donations helped the hemophilia community in some countries to improve diagnosis and increase number of hemophilia patients diagnosed in these countries. At the same time, the session will also demonstrate how donations helped the hemophilia to advocate for sustainable care and played a positive role in motivating health authorities in some countries to start providing patients, for the first time, with treatment products.
In this session from the WFH 2022 World Congress, Glenn Pierce (United States), Donna Coffin (Canada), Margareth Ozelo (Brazil), Novie Amelia Chozie (Indonesia) and Tahira Zafar (Pakistan), will promote the adoption of the WFH Treatment Guidelines as a basis to create country specific National Guidelines.
The WFH Shared Decision Making (SDM) Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between
This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia B. Learn more about different
This video gives a quick introduction to hemostatic rebalancing therapy. Learn more about different treatment options for hemophilia with the
This video gives a quick introduction to gene therapy for hemophilia. Learn more about different treatment options for hemophilia with
This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia A. Learn more about different
This fact sheet contains commonly asked questions and more information on hemostatic rebalancing therapy. Learn more about different treatment options
