WFH Gene Therapy Registry – User guide for people with hemophilia – Italian
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH)
Year: 2020
Language: English
Author(s): World Federation of Hemophilia
Listen to this 45-minute webinar presented on 9 November 2020 to learn more about the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR).
Barbara Konkle, MD (WFH Board of Directors), Glenn Pierce, MD, PhD (WFH VP Medical) and Wolfgang Miesbach, MD (GTR Steering Committee member) discuss the protocol and core data set, the implementation plan, and the timeline of the GTR. The webinar also includes a Q&A session.
To download a pdf of the slides of the webinar, click the icon below.
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH)
This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH)
The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved
The World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR) welcomes the participation of all Hemophilia Treatment Centres (HTCs) involved
This document is an introductory guide to the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic
This document is an introductory guide to the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic