Quality Data Collection
Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.
Report on the Annual Global Survey 2013
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
What is Prophylaxis? – Farsi
The 2021 edition is available in: English, Spanish, French, Arabic, Russian, Simplified Chinese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here […]
Proceedings of the WFH’s Eighth Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Report on the Annual Global Survey 2012
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2011
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2010
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Abstracts of the XXIX International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXIX WFH Congress, Buenos Aires, Argentina, 10-14 July 2010.
State of the Art XXIX International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXIX WFH Congress, Buenos Aires, Argentina, 10-14 July 2010.
Report on the Annual Global Survey 2009
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
HemoAction Card Game – Arabic
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The HemoAction cards teach children how to prevent bleeds and manage hemophilia. Each HemoAction […]
Report on the Annual Global Survey 2008
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.