Substitution therapy | Virtual Summit 2020

Despite significant paradigm shifts in the medical management of hemophilia A with inhibitors and the expanding use of novel non-factor therapies, FVIII-based immune tolerance induction (ITI) is still the only effective means to inhibitor eradication. With the recently introduced Atlanta protocol, emicizumab prophylaxis is given in combination with 50-100 IU/kg FVIII three times a week. […]

Psychosocial Resource Hub

The WFH Virtual Workshops for Psychosocial Professionals series was developed in collaboration with the WFH Psychosocial Committee. The series targets professionals who work with people with bleeding disorders and aims to provide useful and practical tools for their work. The topics covered in this educational series are based on the modules of the WFH Standardized […]

Report on the Annual Global Survey 2020

The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.

Hemophilia in Pictures – Indonesian

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese TThis is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]

WFH Treatment Guidelines: Practical Application in the Middle East | July 30, 2021

Listen to this 90-minute webinar presented on July 30, 2021, on the WFH Guidelines for the Management of Hemophilia, 3rd edition and their practical application in the Middle East. The session was moderated by Alok Srivastava (Professor in the Department of Haematology, and Head of the Centre for Stem Cell Research at the Christian Medical […]

WBDR 2020 Data Report

The World Bleeding Disorders Registry (WBDR) 2020 Data Report provides aggregate data on more than 7,000 people with hemophilia around the globe who are enrolled in the WBDR.

Guidelines for the Management of Hemophilia – Ukrainian

The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Portuguese The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, […]

What is Prophylaxis? – Setswana

The 2021 edition is available in: English, Spanish, French, Arabic, Russian, Simplified Chinese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here […]

Medical Plenary: Gene Therapy | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Steve Pipe and Luigi Naldini explore the promise of gene therapy and the broad-based multi-stakeholder preparation that is needed to deliver on this achievement. Steve Pipe explores that, although we currently stand on the threshold of this achievement, delivering on this promise will require broad-based multi-stakeholder […]

Advocacy During COVID-19: Voices from Europe

Listen to this 1-hour webinar that took place on 27 November 2020, chaired by Baiba Zimele (WFH lay member). Presenters Ellia Tootoonchian (WFH) and Donna Coffin (WFH) discuss the latest data of the Annual Global Survey including patient demographics, while Brian O’Mahony (Ireland), Dejan Petrovic (Serbia) and Dr. James Gauci (Malta) provide information on advocacy […]