Annual Global Survey Mini Report 1: Gender
The WFH Annual Global Survey (AGS) mini reports are advocacy tools that provide more in-depth perspective and context to AGS data. Lack of diagnosis and treatment for women and girls with bleeding disorders remains a challenge in our community. Highlighting gender data from the AGS can help bring awareness to the issues facing women and […]
In-HemoAction Card Game
Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An update of the hugely popular HemoAction game, this edition features additional content covering prophylaxis, inhibitors, bypassing agents, immune tolerance […]
Report on the Annual Global Survey 2015
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Online CFC Registry
General Care and Management of Hemophilia
This eLearning module presents Section 1 of the WFH Guidelines for the Management of Hemophilia: General Care and Management of Hemophilia. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life an introduction to hemophilia and the WFH recommendations regarding principles of care, comprehensive care, fitness and physical activity, adjunctive managements, prophylaxis, […]
Special Management Issues
This eLearning module presents Section 2 of the WFH Guidelines for the Management of Hemophilia: Special Management Issues. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding carriers, genetic testing and counselling, prenatal diagnosis, childbirth, vaccinations, psychosocial issues, sexuality, and ageing for people with hemophilia. Instructions Click […]
International Medical Card
The World Federation of Hemophilia International Medical Card provides critical information to others in the case of an emergency.
Report on the Annual Global Survey 2014
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Genetic Counselling for Hemophilia
Genetic counselling constitutes an integral part of the comprehensive hemophilia care team providing people with hemophilia, and their families, clinical and scientific information, supporting individuals through the decision-making process regarding prenatal and carrier testing, and offering individualized psychosocial assessment and counselling before and after genetic testing. This resource introduces genetic counsellors, the genetic counselling process, […]
Report on the Annual Global Survey 2013
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
A Journey of the Heart
Social workers from around the United States and Canada were asked to write from their hearts about a patient or a mentor who has profoundly impacted their work with adults and children in the bleeding disorders community. This collection of essays aims to share these stories with the community at large as a way to […]
Proceedings of the WFH’s Eighth Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.