In this session from the WFH 2020 Virtual Summit, Radoslaw Kaczmarek, Flora Peyvandi, Dan Hart & Johnny Mahlangu discuss novel products newly arrived on the market, that are very different from traditional clotting factor concentrates and pose new questions about safety and clinical use.
The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.
The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.
The WFH Guidelines for the Management of Hemophilia: AAV Gene Therapy provide the first comprehensive, evidence-based recommendations to support the
The World Federation of Hemophilia invited representatives from its national member organizations, national governments, healthcare providers, industry partners, and other
This video gives a quick introduction to ultra-long half-life (UHL) clotting factor replacement therapy. Learn more about different treatment options
The WFH Shared Decision Making (SDM) Workbook is for people with hemophilia A or B and their healthcare team. It
The World Federation of Hemophilia (WFH) Shared decision-making (SDM) tool helps clinicians and people with hemophilia work together to make
The WFH Shared Decision Making (SDM) Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between
