CDC Webinar: Joint Guidelines on the Diagnosis and Management of VWD
On February 25th, 2021 the CDC presented this one-hour webinar on the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD) as part of the Public Health Webinar Series on Blood Disorders. Jean Grow, PhD, Nathan Connell, MD, MPH, and Angela Weyand, MD, guideline development panelists and experts […]
Patient Focus – ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of VWD
Listen to this patient-focused 60-minute webinar, presented on June 16, 2020 at the World Federation of Hemophilia (WFH) Virtual Summit, to get a preview of two of the recommendations resulting from the ASH ISTH NHF ISTH WFH 2021 VWD Guidelines. Learn why international clinical guidelines are particularly important to this community, how they were developed, […]
ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of VWD
VWD Diagnosis Guidelines VWD Management Guidelines These clinical practice guidelines for the diagnosis and management of von Willebrand disease (VWD) were developed in collaboration with the American Society for Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), and National Hemophilia Foundation (NHF) and published in the journal Blood Advances. The two development panels, […]
Snapshot: ASH ISTH NHF WFH Guideline Recommendations for the Management of von Willebrand Disease (VWD)
This one-page summary presents the highlights of the ASH ISTH NHF WFH Guidelines on the Management of von Willebrand Disease (VWD). It outlines what is covered in the guidelines, why they matter and who they affect. Click here to access the full ASH ISTH NHF WFH VWD Guidelines.
Snapshot: ASH ISTH NHF WFH Guideline Recommendations for the Diagnosis of von Willebrand Disease (VWD)
This one-page summary presents the highlights of the ASH ISTH NHF WFH Guidelines on the Diagnosis of von Willebrand Disease (VWD). It outlines what is covered in the guidelines, why they matter and who they affect. Click here to access the full ASH ISTH NHF WFH VWD Guidelines.
International VWD guidelines and how to use them
Listen to this 75-minute webinar, presented on November 20, 2020 at the World Federation of Hemophilia (WFH) Global Summit on Women & Girls with Inherited Bleeding Disorders, to learn more about how the ASH ISTH NHF ISTH WFH 2021 VWD Guidelines can be used for advocacy in ensuring adequate treatment and care for persons living […]
WFH Global VWD Call to Action: The World’s Response
Listen to this webinar which took place on August 26, 2020. Moderated by Dawn Rotellini (USA), the webinar features an overview of von Willebrand Disease by Magdy El Ekiaby, MD (Egypt), information about the Global VWD Call to Action by Luisa Durante (Canada), and presentations by Chedia Aroua (Tunisia), Cassie Osejo (Panama), and Louise Ellwood […]
What is von Willebrand Disease – Bengali
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Polish, Farsi, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and […]
An international survey to inform priorities for new guidelines on von Willebrand disease
As part of their international collaboration to develop guidelines for the diagnosis and management of von Willebrand disease (VWD), the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), the National Hemophilia Foundation (NHF) and the World Federation of Hemophilia (WFH), along with the guidelines methods team, conducted a stakeholder survey […]
New Biological Insights in von Willebrand Disease: Angiogenesis and Angiodysplasia
In the Tuesday afternoon session entitled von Willebrand Disease: Clinical Conundrums, Anna Randi describes the mechanisms that regulate angiogenesis proposing a possible role of VWF in this regulation and discussing therapeutic implications of the latest findings in this field.
von Willebrand Disease: Current Approaches to Diagnosis and Treatment
In the Tuesday afternoon session entitled von Willebrand Disease: Clinical Conundrums, Frank Leebek presents the current challenges in VWD diagnosis and treatment, namely bleeding score variability, overlap of type 1 VWD with low VWF, and the hampering effect of biological variation on test results, as well as the effect of DDAVP on VWF levels.
Diagnosis of von Willebrand Disease: Phenotypic Characterization
The accurate diagnosis of von Willebrand disease (VWD) is crucial to its management. This resource describes laboratory tests based on the observable traits, or phenotype, of a person with bleeding symptoms and a positive family bleeding history that can be used to determine the specific type and variant of VWD. The companion monograph, TOH 56 […]