von Willebrand disease, a closer look | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Dawn Rotellini, Paula James, Jeannette Cesta, Cody Kester & Baiba Ziemele discuss von Willebrand disease (VWD) treatment options, patient perspectives and the differences of VWD between men and women. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]

von Willebrand disease | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Jill Johnsen, Michael Laffan & Jameela Sathar discuss von Willebrand disease (VWD), the most common inherited bleeding disorder. This session provides an overview of VWD diagnosis and treatment, special considerations in treating women with VWD, and current genomic approaches to VWD. The WFH does not engage […]

Advocating for Better Care for People with VWD | September 1 2021

Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]

WFH Highlight: WFH global initiative for better care of VWD | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Margaret Ragni, Augusto Federici, Roshni Kulkarni and Rezan Abdul-Kadir discuss practical ways to diagnose VWD that would work in all contexts around the world, and ways to educate the community on management. The WFH does not engage in the practice of medicine and under no circumstances […]

Free papers: VWD and Women’s issues | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Andra James, Mandy Yap, Mario von Depka Prondzinski, Lubna Zafar, Robert Sidonio and Roseline d’Oiron discuss: “The clinical usefulness of elongated platelet function analysis in characterizing Bleeding of Unknown Cause (BUC)” “Angiogenic alterations in VWD as a possible cause of epistaxis” “The menace of menorrhagia in […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021

Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]

Improving Care for People with VWD | May 18 2021

Listen to this 90-minute webinar presented on May 18, 2021 to learn about the recently published ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Nathan Connell (Assistant Professor of Medicine, Harvard Medical School). Michelle Lavin (WFH VWD & RBD Committee Chair), Baiba […]

What is von Willebrand Disease? – Setswana

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese, Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs:  Farsi, Polish, Bengali This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared […]

CDC Webinar: Joint Guidelines on the Diagnosis and Management of VWD

On February 25th, 2021 the CDC presented this one-hour webinar on the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD) as part of the Public Health Webinar Series on Blood Disorders. Jean Grow, PhD, Nathan Connell, MD, MPH, and Angela Weyand, MD, guideline development panelists and experts […]

Patient Focus – ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of VWD

Listen to this patient-focused 60-minute webinar, presented on June 16, 2020 at the World Federation of Hemophilia (WFH) Virtual Summit, to get a preview of two of the recommendations resulting from the ASH ISTH NHF ISTH WFH 2021 VWD Guidelines. Learn why international clinical guidelines are particularly important to this community, how they were developed, […]

ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of VWD

VWD Diagnosis Guidelines VWD Management Guidelines These clinical practice guidelines for the diagnosis and management of von Willebrand disease (VWD) were developed in collaboration with the American Society for Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), and National Hemophilia Foundation (NHF) and published in the journal Blood Advances. The two development panels, […]