Year: 2019
Language: English
As part of their international collaboration to develop guidelines for the diagnosis and management of von Willebrand disease (VWD), the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), the National Hemophilia Foundation (NHF) and the World Federation of Hemophilia (WFH), along with the guidelines methods team, conducted a stakeholder survey to identify topics of highest importance that could be addressed by the guidelines. This paper, freely available in Haemophilia Journal, the official journal of the WFH, shares the findings of this survey. A remarkable number of stakeholders participated in the survey from all over the world including people with VWD, their carers, hematologists, and other members of the comprehensive care team.
Listen to this 90-minute webinar presented on September 21, 2023 to learn about von Willebrand disease (VWD) in low-resource settings.
This edition is available in: English, Spanish, French The previous edition is also available in: Arabic, Russian, Simplified Chinese, Japanese
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the
In these sessions from the WFH 2022 World Congress, listen to Peter Lenting, Magdy El Ekiaby, Nathan Connell, Brooke Sadler,
In this session from the WFH 2020 Virtual Summit, Dawn Rotellini, Paula James, Jeannette Cesta, Cody Kester & Baiba Ziemele
In this session from the WFH 2020 Virtual Summit, Jill Johnsen, Michael Laffan & Jameela Sathar discuss von Willebrand disease
