Hemophilia

Genetic Technologies for Hemophilia

This information sheet is designed to help understand the similarities, differences, and current state of knowledge for the existing genetic technologies for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends […]

Progress toward a cure for hemophilia: gene editing explained

The World Federation of Hemophilia (WFH) hosted an educational webinar titled “Progress toward a cure for hemophilia: gene editing explained” on November 25, 2025. In this session, Glenn Pierce, Vice President, Medical, World Federation of Hemophilia (U.S.A.) explored how cutting-edge genetic technologies are reshaping the future of hemophilia care. The objectives of the webinar were […]

Summary of the 13th WFH Global Forum On Research and Treatment Products For Bleeding Disorders

A summary of discussions held at the Thirteenth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, and industry representatives. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation […]

Summary of the 12th WFH Global Forum On Research and Treatment Products For Bleeding Disorders

A summary of discussions held at the Twelfth WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, and industry representatives. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation […]

Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual

The 3rd edition of the WFH laboratory Manual is the definitive how-to guide for the accurate diagnosis of hemophilia and other bleeding disorders. The Manual contains updates on previous topics on coagulation, and includes new sections on inhibitors, vWD and rare blood disorders, and molecular genetic analysis. The 3rd edition is available in: French, Spanish […]

WFH Shared Decision Making Workbook for Hemophilia Treatment

The WFH Shared Decision Making (SDM) Workbook is for people with hemophilia A or B and their healthcare team. It defines the best practice for shared decision-making in hemophilia treatment and care, and provides a guide for people with hemophilia, caregivers, and healthcare professionals to facilitate successful shared decision-making. The WFH SDM Tool is a […]

Circumcision in Hemophilia

This paper provides an overview of the Turkish method for circumcision in people with hemophilia, as well as appendices of the Israeli and Moroccan perspective. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the […]

WFH Shared Decision Making Tool for Hemophilia Treatment

The WFH Shared Decision Making (SDM) Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between people with hemophilia (PWH) A or B and/or caregivers and their healthcare team, leading to informed decision-making. The WFH SDM Tool provides a framework to guide PWH through the thought process regarding treatment goals and […]

Gene Therapy for Hemophilia B Fact Sheet

This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia B. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]

Gene Therapy for Hemophilia

This video gives a quick introduction to gene therapy for hemophilia. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]

Hemostatic Rebalancing Therapy

This video gives a quick introduction to hemostatic rebalancing therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific […]

Gene Therapy for Hemophilia A Fact Sheet

This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia A. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]