Hemophilia Societies: Challenges and Development
Outlines the common challenges faced by hemophilia societies at various stages of development and offers practical solutions to help these organizations meet the needs of people with bleeding disorders.
Patient Outreach Guide for Hemophilia and Other Bleeding Disorders
This guide helps national hemophilia organizations plan and carry out an outreach campaign to identify people with hemophilia or other bleeding disorders who have not been diagnosed or are underserved by healthcare services.
Advantages of a National Tender System for Clotting Factor Concentrates
Also Available In: Japanese A national tender is a cost-effective system for the purchase of products or services, such as clotting factor concentrates, that facilitates the prediction of demand and use of treatment products and can lead to a higher standard of care.
Benefits of a National Patient Registry
Also Available In: Japanese Patient registries are crucial for monitoring trends in health, allocating resources, organizing and tracking distribution of treatment products, and improving the purchasing process on a national scale.
Benefits of a National Patient Registry – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 患者登録は、健康上の傾向のモニタリング、資源の割り当て、治療用製剤供給の調整および追跡、全国規模での購入プロセスの改善に極めて重要です。
Guide to Developing a National Patient Registry
Having a national patient registry means being able to answer fundamental questions about the hemophilia population within a given country. This step-by-step guide outlines the basic principles of data collection, maintenance, and analysis and compares different types of registries.