Global Policy and Access Summit 2023
The presentations and discussions of the third edition of the WFH Global Policy and Access Summit (GPAS) center around increasing access to diagnosis, treatment and care for people living with bleeding disorders. These include speakers from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates. The WFH […]
Global Policy and Access Summit 2022
The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving care and access to treatment. They include speakers and participants from local and international partner organizations, national government representatives, healthcare professionals, WFH NMO leaders, and bleeding disorders advocates. The WFH does not engage in the […]
Multidisciplinary track | WFH World Congress 2022
In these sessions from the WFH 2022 World Congress, listen to Kate Khair, Luke Pembroke, Louis Marlow, Andrew Selvaggi, Robert Cooper, Simon Fletcher, Sarah O’Brien, Ming Lim, Brittany Lee-Acton, Carrie Arnold, Rick Waines, Zander Masser, Brian O’Mahony, Barbara Konkle, Adolfo Llinas, Tyler Buckner, Nathalie Roussel, Valérie-Anne Chantrain and Bojan Pirnat address current multidiscilinary topics in […]
PACT Advocacy Academy: Towards better access to care and treatment globally | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Donna Coffin, Salome Mekhuzla, Carlos Safadi Marquez, John Gershman and Mathieu Jackson present an overview of the WFH’s Path to Access to Care and Treatment (PACT) Program and launch the new PACT Advocacy Academy – an 8-month training course for NMO leaders and advocates developed […]
Models of care delivery today and in the post-pandemic world | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Dan Hart, Margareth Ozelo, Hatoon Mohammed and Daniel Anibal Garcia discuss how the pandemic has brought many challenges to the existing models of organization and delivery of care. This session highlights the opportunities that also arise in the post-pandemic era. Presenters will share different case […]
Effective strategies to improve access to treatment and care | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Dawn Rotellini, Bradley Rayner, Declan Noone and Durhane Wong-Rieger, will address the importance of data analysis to inform policy decisions, building alliances with patient groups and other effective strategies to improve access to treatment and care for people with bleeding disorders. Emphasis will be made […]
Economics of care and access to therapies | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Dawn Rotellini, Mark Skinner, Jamie O’Hara and David Page will present an overview of the current state of access to therapies for people with bleeding disorders. Speakers will also highlight the importance of patient-relevant data on treatment choices and health policy decision-making. Session will include […]
Current landscape of access to treatment & care globally | Global Policy and Access Summit 2021
How is the pandemic impacting global healthcare systems around the world? What will the “new normal” be? In this opening session from the Global Policy and Access Summit, Cesar Garrido (WFH President) and Glenn Pierce, MD (WFH VP Medical) will address the effects of the pandemic on WFH’s vision of Treatment for All, as well […]
Collaborating to increase access: Perspectives from different stakeholders | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Glenn Pierce, MD (WFH VP Medical), will moderate a panel discussion with Megan Adediran, Emna Gouider & Latifa Belakhel, bringing together perspectives from a patient organization leader, a healthcare provider and a national government representative. This discussion will highlight potential areas of collaboration between stakeholders […]
Procurement models | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Mukesh Garodia, Brian O’Mahony, Yuri Zhulyov, Margarita Elizabeth Garcia Gonzalez and Brian Fitzgerald give an overview of various procurement models for hemophilia and other inherited bleeding disorders therapeutic products, present key principles in setting up an efficient national procurement mechanism and highlight the importance of […]
Advocacy during COVID-19: what can we do in Africa? – Portuguese
The COVID-19 pandemic has significantly affected the bleeding disorders community, and many countries have seen their governments shift their focus and resources to combating the pandemic. It is important for NMOs to remain aware of the changes in government priorities and take a proactive approach to ensure that the needs of the local bleeding disorders […]
Advocacy during COVID-19: what can we do in Africa?
The COVID-19 pandemic has significantly affected the bleeding disorders community, and many countries have seen their governments shift their focus and resources to combating the pandemic. It is important for NMOs to remain aware of the changes in government priorities and take a proactive approach to ensure that the needs of the local bleeding disorders […]