This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Many carriers of hemophilia also experience symptoms of the disorder. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This fact sheet includes answers to questions […]
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Desmopressin (DDAVP) may be the treatment of choice for patients with mild or moderate hemophilia A and type 1 von Willebrand disease (VWD). This Fact Sheet presents essential information about this synthetic medicine which costs much less than […]
Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病治療センター（HTC）は、ケアの極めて重要な要素です。このファクトシートでは、HTCがどのように設立され、それによって出血性疾患患者の全体的な健康および満足度がどのように向上するかを概説します。
Also Available In: Japanese A national tender is a cost-effective system for the purchase of products or services, such as clotting factor concentrates, that facilitates the prediction of demand and use of treatment products and can lead to a higher standard of care.
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 国ごとの国家入札制度は、凝固因子製剤等の製品やサービスを購入するコスト効率の高い制度で、治療用製剤の需要や使用量の予測を促進し、より高水準な治療を可能にします。
Also Available In: Japanese Patient registries are crucial for monitoring trends in health, allocating resources, organizing and tracking distribution of treatment products, and improving the purchasing process on a national scale.
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 患者登録は、健康上の傾向のモニタリング、資源の割り当て、治療用製剤供給の調整および追跡、全国規模での購入プロセスの改善に極めて重要です。
Also Available In: Japanese Access to home treatment reduces the economic impact on healthcare systems and improves the quality of life for both the person with hemophilia and his family.
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 在宅療法の利用は、医療制度における経済的負担を軽減し、血友病患者とその家族双方の生活の質を向上させます。