Gene Therapy for Hemophilia B Fact Sheet
This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia B. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
Gene Therapy for Hemophilia A Fact Sheet
This fact sheet contains commonly asked questions and more information on gene therapy for hemophilia A. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For […]
Hemostatic Rebalancing Therapy Fact Sheet
This fact sheet contains commonly asked questions and more information on hemostatic rebalancing therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
Bispecific Antibody Therapy Fact Sheet
This fact sheet contains commonly asked questions and more information on bispecific antibody therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
Clotting Factor Replacement Therapies Fact Sheet
This fact sheet contains commonly asked questions and more information on standard half-life (SHL) and extended half-life (EHL) clotting factor replacement therapies. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders – German
This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Many women and girls also experience symptoms of Hemophilia. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This fact sheet includes answers to questions such […]
Desmopressin (DDAVP)
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Desmopressin (DDAVP) may be the treatment of choice for patients with mild or moderate hemophilia A and type 1 von Willebrand disease (VWD). This Fact Sheet presents essential information about this synthetic medicine which costs much less than […]
Desmopressin (DDAVP) – Polish
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Quality Data Collection
Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.
Structure and Functions of Comprehensive Hemophilia Treatment Centres
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Structure and Functions of Comprehensive Hemophilia Treatment Centres – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病治療センター（HTC）は、ケアの極めて重要な要素です。このファクトシートでは、HTCがどのように設立され、それによって出血性疾患患者の全体的な健康および満足度がどのように向上するかを概説します。