Multidisciplinary plenary: Quality of life | Virtual Summit 2020
This plenary from the WFH 2020 Virtual Summit seeks to explore and explain the role of pain. Deon York, Lorimer Moseley and Dr. Bajan Singh will explore the new understanding of pain, and how that understanding can change one’s perspectives of dealing with pain, as well as an overview of what sleep is, how it […]
Musculoskeletal: Hot topic debates | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit will feature three controversial topics debated by experts in their field. Hortensia De la Corte Rodriguez, Annette von Drygalski, Mauricio Silva, David Dalstrom, Janaina Bosso and David Stephensen will discuss point-of-care ultrasound (POCUS) image capture by patients, ankle arthrodesis vs. arthroplasty, and HJHS vs. functional measurement. The […]
Management of comorbidities in bleeding disorders | Virtual Summit 2020
In this session from WFH 2020 Virtual Summit, Mike Makris, Pal Andre Holme and Christine Kempton explore the incidence and management of the comorbidities of the aging people with hemophilia, with a focus on cardiovascular disease and osteoporosis. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Free papers: Late breaking 2 | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Saliou Diop, Ampaiwan Chuansumrit, Silvia Riva and Ahmad Tarawah discuss: “Connection between a local Registry and World Bleeding Disorders Registry: Automatic hemophilia patients’ data transfer” “Psychological status of older patients with hemophilia: results from the multicenter S+PHERA study” “Prevalence of bleeding symptoms among young adults in […]
Laboratory sciences: Replacement therapy and testing | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Emmanuel Favaloro, Robert Gosselin and Geoffrey Kershaw discuss: How the emergence of chromogenic factor VIII testing has illuminated both discrepancies between testing methods and potential issues associated with product potency assessment How the creation of B-domain deleted recombinant factor VIII replacement product has initiated […]
Laboratory sciences: Laboratory issues and testing | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Stefen Tiefenbacher, Anna Lowe and Annette Bowyer discuss: Gene therapy for FVIII and FIX: Will there be laboratory assay issues? Laboratory issues with isolated emicizumab therapy Laboratory issues when emicizumab and FVIII replacement are combined The WFH does not engage in the practice of […]
WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]
Healthy living | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Hariyati Shahrima, Richa Mohan, Sabrina Farina and Mina Nguyen-Driver discuss nutrition, fitness, sleep, self-esteem, ageing and sexuality. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, […]
Free papers: Young researchers | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Cedric Hermans, Geertje Goedhart, Patricio Cesar Gatti, Sandeep Albert, Tien-Truong Dang, Ozlem Turan and Glaivy Batsuli discuss: “The Dutch Haemophilia Registry HemoNED – building an Ecosystem” “Evaluation of treatment with dental implants in patients with hemophilia preliminary study” “Surgical management of a variety of haemophilic pseudotumours […]
WFH Highlight: WFH global initiative for better care of VWD | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Margaret Ragni, Augusto Federici, Roshni Kulkarni and Rezan Abdul-Kadir discuss practical ways to diagnose VWD that would work in all contexts around the world, and ways to educate the community on management. The WFH does not engage in the practice of medicine and under no circumstances […]
General plenary: Managing COVID-19 and bleeding disorders | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit was developed as an educational response to the COVID-19 pandemic for the global bleeding disorders community. Speakers Radoslaw Kaczmarek, Flora Peyvandi, Cedric Hermans and Mark Skinner discuss the pathophysiology and clinical manifestations of COVID-19, practical advice on the management of COVID-19, and safety and supply of plasma […]
Free papers: Orthopedic issues | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Adolfo Llinas, Cedric Hermans, Jenny Zhou, Ozgur Mert Bakan and Kumiko Ono discuss: “Confirmation of the very low rate of subclinical venous thrombosis in people with hemophilia undergoing major orthopedic surgery in the absence of pharmacological thromboprophylaxis” “Bleeding with iron deposition and vascular remodeling in subchondral […]