Uncertainty in an era of transformative therapy for hemophilia | Virtual Summit 2020
In this session from the WFH 2020 World Summit, Glenn Pierce will examine the evolution of gene therapy while addressing the unknowns that need to be answered. Hemophilia is at the dawn of a new era in therapeutic management, one that can generate greater protection from bleeding and a functional cure in some individuals. The […]
von Willebrand disease, a closer look | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Dawn Rotellini, Paula James, Jeannette Cesta, Cody Kester & Baiba Ziemele discuss von Willebrand disease (VWD) treatment options, patient perspectives and the differences of VWD between men and women. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
von Willebrand disease | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Jill Johnsen, Michael Laffan & Jameela Sathar discuss von Willebrand disease (VWD), the most common inherited bleeding disorder. This session provides an overview of VWD diagnosis and treatment, special considerations in treating women with VWD, and current genomic approaches to VWD. The WFH does not engage […]
The WFH Gene Therapy and World Bleeding Disorder Registries | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Barbara Konkle, Alfonso Iorio & Catherine Lambert will discuss & highlight two key WFH data programs: The WFH Gene Therapy Registry (GTR) and the WFH World Bleeding Disorders Registry (WBDR). With gene therapy for hemophilia on the horizon, there is an urgent need to develop a […]
Psychosocial: New communication strategies for the bleeding disorders community | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Ed Kuebler, Silvina Grana, Diane Standish, David Silva & Patricia Cabre will explore challenges that affect communication between Hemophilia Treatment Centre (HTC) team members and the patients and families whom they serve. Providers want their patients to understand, but sometimes, it seems that the message does […]
Substitution therapy | Virtual Summit 2020
Despite significant paradigm shifts in the medical management of hemophilia A with inhibitors and the expanding use of novel non-factor therapies, FVIII-based immune tolerance induction (ITI) is still the only effective means to inhibitor eradication. With the recently introduced Atlanta protocol, emicizumab prophylaxis is given in combination with 50-100 IU/kg FVIII three times a week. […]
Physical activity for joint health and wellness | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Paul McLaughlin, Adolfo Llinas, Pamela Narayan & Chavez Edgecombe discuss how exercising joints and muscles can reduce spontaneous bleeding in the long term. This session will aim to demonstrate easy and practical methods in musculoskeletal care from orthopedist, physiotherapist and patient perspectives, including bone health without […]
Opening plenary | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit is the official opening of the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community. The WFH President, Mr. Alain Weill, will present welcoming remarks, along with the WFH VP (Medical), Dr. Glenn Pierce, and the WFH’s CEO, Mr. Alain Baumann, launching the first and exciting new […]
Nurses: Unmet areas of evidence-based nursing in bleeding disorders care | Virtual Summit 2020
As the role of hemophilia nurses continues to expand globally, they are practicing at ever-more advanced levels, delivering entirely nurse-led care. This session from the WFH 2020 Virtual Summit with Kate Khair, Chris Guelcher, Debra Pollard, Kelly Tickle & Mahmoud Abu Riash, will cover best evidence-based practices and will also look at how the role […]
Nurses: Emerging hemophilia nursing skills | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit, with Kate Khair, Amber Federizo, Michelle Witkop, Regina Butler & Cathy Harrison, will cover best evidence-based practices and will also look at how the role of nurses in delivering care will change dramatically over the coming years. The WFH does not engage in the practice of medicine […]
Psychosocial: Training and career guidance for youth with bleeding disorders | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Susan Cutter, Claude Bartholomew, Annie Bole, Tony Roberts & Santosh Manivannan will explore the ways in which social workers can assist youth with bleeding disorders explore careers and develop skills that will prepare them for employment. The presentation will also address the economic disparity in countries […]
Musculoskeletal: Synovitis & synovectomy | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit with Sébastien Lobet, Eline van Bergen, Sylvia Thomas & Mauricio Silva will address the current understanding of synovitis and its treatment options, with specific emphasis on chemical and radioactive synovectomy, surgical options, rehabilitation, and non-surgical management. The WFH does not engage in the practice of medicine and […]