Resources » WFH Gene Therapy Registry – User guide for people with hemophilia
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Year: 2022

Language: English

Author(s): World Federation of Hemophilia

Format: Document

WFH Gene Therapy Registry – User guide for people with hemophilia

ADDITIONAL INFORMATION

This document is an introductory guide for people with hemophilia who wish to join the World Federation of Hemophilia (WFH) Gene Therapy Registry (GTR). It answers basic questions about the registry, its purpose, and what participants can expect.

Please reach out to WFH with questions regarding participation in the registry at [email protected].

The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions. The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.

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