In this workshop from the WFH 2022 World Congress, listen to Miguel Escobar, Alfonso Iorio, Donna Coffin, Ellia Tootoonchian, Emily Ayoub, Toong Youttananukorn, Mark Skinner, Mayss Naccache, Thi Mai Nguyen, Jeff Stonebraker, and Declan Noone address improving patient outcomes through data.
In this workshop from the WFH 2022 World Congress, Miguel Escobar (United States), Alfonso Iorio (Canada), Donna Coffin (Canada), Ellia Tootoonchian (Canada), Emily Ayoub (Canada), Toong Youttananukorn (Canada), Mark Skinner (United States), Mayss Naccache (Canada), and Thi Mai Nguyen (Vietnam) discuss the WFH Annual Global Survey, the World Bleeding Disorders Registry, patient reported outcomes through myWBDR, PROBE, the WFH Gene Therapy Registry, and regional experience in Vietnam.
In this workshop from the WFH 2022 World Congress, Ellia Tootoonchian (Canada) and Jeff Stonebraker (United States) discuss tools for advocacy and indicators of care.
In this workshop from the WFH 2022 World Congress, Alfonso Iorio (Canada) and Declan Noone (Ireland) discuss the practical use of data and combining World Bleeding Disorder Registry (WBDR), myWBDR, Annual Global Survey & Quality of Life data to build an advocacy message or develop a policy.
In this session from the WFH 2020 Virtual Summit, Mayss Naccache, Emily Ayoub, Toong Youttananukorn and Ellia Tootoonchian discuss: “The
This workshop from the WFH 2020 Virtual Summit, presented by Ellia Tootoonchian, Mark Skinner, Donna Coffin, Alfonso Iorio, Emna Gouider-Belhadjali