Resources » Advocating for Better Care for People with VWD | September 1 2021
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Year: 2021

Language: English

This resource is also available in: Arabic French Russian Spanish

Author(s): World Federation of Hemophilia

Format: Video

Advocating for Better Care for People with VWD | September 1 2021

ADDITIONAL INFORMATION

Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD).

The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee).

Susie Couper (Member of the WFH WIBD Committee), Jameela Sathar, MD (WFH VWD & RBD Committee), Shahla T. Sohail, MD (Hemophilia Patients Welfare Society of Pakistan), Abira Maheen, MD (Hemophilia Foundation-Pakistan) and Charity Pikiti (Haemophilia Foundation of Zambia), discussed advocacy for VWD, specific recommendations from the guidelines, and how NMOs have successfully advocated for better care.

The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.

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