Psychosocial Resource Hub

The WFH Virtual Workshops for Psychosocial Professionals series was developed in collaboration with the WFH Psychosocial Committee. The series targets professionals who work with people with bleeding disorders and aims to provide useful and practical tools for their work. The topics covered in this educational series are based on the modules of the WFH Standardized […]

Collaborations, Connections and COVID19: Twinning Stories from Near and Far

This 1-hour webinar was moderated by Deniece Chevannes (USA), Chair of the HOT Twinning Committee on September 17, 2020. Patricia Silva, MD (Mozambique), Yuri Zhulyov (Russia), and Santosh Manivannan (India) discussed how their Twinning partnerships are coping with the COVID-19 pandemic. Stephanie Pineda, WFH Program Coordinator, presented Twinning Program highlights. The webinar also includes a […]

Youth Resilience During COVID-19 – Staying Strong Together!

Listen to this 1-hour webinar that took place on 3 September 2020 to learn stories of youth engagement around the world and wellness tips from a psychosocial expert. The panel of youth speakers included Salomón Cárcamo Bonilla (Honduras), Jessica Page (U.K.) and Jodarsen P. Arnachellum (Mauritius). Edward Kuebler (U.S.A), outgoing WFH Psychosocial Committee chair, provided […]

In-HemoAction Card Game – Chinese

Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An update of the hugely popular HemoAction game, this edition features additional content covering prophylaxis, inhibitors, bypassing agents, immune tolerance […]

In-HemoAction Card Game – Russian

Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An update of the hugely popular HemoAction game, this edition features additional content covering prophylaxis, inhibitors, bypassing agents, immune tolerance […]

In-HemoAction Card Game – Arabic

Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An update of the hugely popular HemoAction game, this edition features additional content covering prophylaxis, inhibitors, bypassing agents, immune tolerance […]

Voces Jóvenes

La Fortaleza de la FMH y de sus organizaciones nacionales miembros radica en el compromiso de líderes que son fuente de inspiración y que trabajan cotidianamente para impulsar nuestra visión común de Tratamiento para todos. Sin embargo, muchas organizaciones de pacientes enfrentan problemas para lograr la colaboración de adultos jóvenes en sus comunidades y necesitan […]

Parole aux Jeunes

La force de la Fédération mondiale de l’hémophilie (FMH) et de ses organisations nationales membres (ONM) réside dans l’engagement que prennent des leaders inspirants qui œuvrent chaque jour afin de promouvoir la vision du traitement pour tous. Pourtant, comme bon nombre d’organisations de patients peinent à impliquer les jeunes au sein de leurs communautés, il […]

In-HemoAction Card Game

Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The In-HemoAction cards teach children how to prevent bleeds and manage hemophilia. An update of the hugely popular HemoAction game, this edition features additional content covering prophylaxis, inhibitors, bypassing agents, immune tolerance […]