WFH Treatment Guidelines: Practical Application in the Middle East | July 30, 2021
Listen to this 90-minute webinar presented on July 30, 2021, on the WFH Guidelines for the Management of Hemophilia, 3rd edition and their practical application in the Middle East. The session was moderated by Alok Srivastava (Professor in the Department of Haematology, and Head of the Centre for Stem Cell Research at the Christian Medical […]
Key Concepts and Principles of Care for Bleeding Disorders | July 28, 2021
Listen to this back-to-basics 90-minute webinar, presented on July 28, 2021, which offers members of NMOs the opportunity to get a refresher on the key concepts and principles of care for inherited bleeding disorders. The webinar program also covers foundational knowledge on topics relevant for NMO members and advocates. This webinar was chaired by Carlos […]
Proceedings of the WFH’s Eleventh Global Forum on Research and Treatment Products for Bleeding Disorders
A summary of discussions held at the Eleventh WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, industry representatives, and not-for-profit fractionators.
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021
Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: German Many women and girls also experience symptoms of Hemophilia. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This fact sheet includes answers to questions such […]
Ask Me Anything: Minimizing menstrual bleeding during sex?
Pour activer le sous-titrage en français, cliquez d’abord sur l’icône CC et ensuite sur l’icône des paramètres pour sélectionner le langage. Para activar los subtítulos en español, primero haga clic en el ícono CC y luego haga clic en el ícono de configuración para seleccionar el idioma. These videos discuss intimate relationships in clear language. […]
Ask Me Anything: Intimate alternatives to intercourse?
Pour activer le sous-titrage en français, cliquez d’abord sur l’icône CC et ensuite sur l’icône des paramètres pour sélectionner le langage. Para activar los subtítulos en español, primero haga clic en el ícono CC y luego haga clic en el ícono de configuración para seleccionar el idioma. These videos discuss intimate relationships in clear language. […]
Report on the Annual Global Survey 2017
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Updates on Clinical Trials of Gene Therapy in Hemophilia
The fifth and final activity in the Clinical Advances in Gene Therapy for Hemophilia CME curriculum, Updates on Clinical Trials of Gene Therapy in Hemophilia, is a clinical article. Follow Thierry VandenDreissche (Brussels, Belgium) as he takes a deeper dive into the advances made during the recent early phase gene therapy clinical trials in hemophilia […]
Why Gene Therapy for Hemophilia? Exploring the Challenges of Current Therapies
Re-certified for CME credits, to Sept 6, 2020! The fourth activity in the Clinical Advances in Gene Therapy for Hemophilia CME curriculum, Why Gene Therapy for Hemophilia? Exploring the Challenges of Current Therapies, is an expert video exchange on gene therapy in the context of therapies currently available for hemophilia around the world. Watch as […]
The Science of Gene Therapy for Hemophilia
Re-certified for CME credits, to Sept 6, 2020! The third activity in the Clinical Advances in Gene Therapy for Hemophilia CME curriculum, The Science of Gene Therapy for Hemophilia, is an expert video commentary on the vector technology behind gene therapy in hemophilia. Watch as Glenn Pierce, WFH Vice President Medical, examines early clinical trials, […]
Gene Therapy: Past, Present, and Future
The second activity in the Clinical Advances in Gene Therapy for Hemophilia CME curriculum, Gene Therapy: Past, Present, and Future, is a round table video discussion of the evolution of gene therapy in hemophilia. Watch three experts reflect on the development, ongoing research, and current and future uses of gene therapy in hemophilia. A transcript […]