International Women’s Day webinar | March 8 2022
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
WFH Humanitarian Aid program: Past and future | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Assad Haffar, Megan Adediran, Kibet Shikuku, Glenn Pierce, Alain Baumann, Bill Sibold, Guido Oelkers, Iqbal Mufti, Klaus Marten, Lauren Syring & Antti Kourula discuss the WFH Humanitarian Aid Program, which improves access to care and treatment by providing much-needed support for people with inherited bleeding disorders […]
What does quality of life mean to you? Living with (an inherited) bleeding disorder in a changing world | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Deon York, Nathalie Roussel, Cathy Harrison, Lauren Phillips & Randall Curtis discuss what quality of life means from the perspective of a person living with a bleeding disorder. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for […]
Multidisciplinary plenary: Women ageing gracefully | Virtual Summit 2020
In this plenary from the WFH 2020 Virtual Summit, Kate Khair, Michelle Lavin, Rezan Abdul-Kadir & Jameela Sathar will address women’s long-term health issues and improve screening, as well as answer any questions from the virtual audience. This plenary has a special emphasis on women and those who care for them, and aims to identify […]
WFH Educational: Treatment choice in an era of change | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Glenn Pierce, Johnny Mahlangu, David Page & Brian O’Mahony explore the patient and provider perceptions on treatment choices: how does each make a choice and process the risk-benefit analysis. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Treatments for bleeding disorders: Current environment & pipeline products | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Radoslaw Kaczmarek, Flora Peyvandi, Dan Hart & Johnny Mahlangu discuss novel products newly arrived on the market, that are very different from traditional clotting factor concentrates and pose new questions about safety and clinical use. The WFH does not engage in the practice of medicine and […]
Uncertainty in an era of transformative therapy for hemophilia | Virtual Summit 2020
In this session from the WFH 2020 World Summit, Glenn Pierce will examine the evolution of gene therapy while addressing the unknowns that need to be answered. Hemophilia is at the dawn of a new era in therapeutic management, one that can generate greater protection from bleeding and a functional cure in some individuals. The […]
von Willebrand disease, a closer look | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Dawn Rotellini, Paula James, Jeannette Cesta, Cody Kester & Baiba Ziemele discuss von Willebrand disease (VWD) treatment options, patient perspectives and the differences of VWD between men and women. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
von Willebrand disease | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Jill Johnsen, Michael Laffan & Jameela Sathar discuss von Willebrand disease (VWD), the most common inherited bleeding disorder. This session provides an overview of VWD diagnosis and treatment, special considerations in treating women with VWD, and current genomic approaches to VWD. The WFH does not engage […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders – German
This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
The WFH Gene Therapy and World Bleeding Disorder Registries | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Barbara Konkle, Alfonso Iorio & Catherine Lambert will discuss & highlight two key WFH data programs: The WFH Gene Therapy Registry (GTR) and the WFH World Bleeding Disorders Registry (WBDR). With gene therapy for hemophilia on the horizon, there is an urgent need to develop a […]
Psychosocial: New communication strategies for the bleeding disorders community | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Ed Kuebler, Silvina Grana, Diane Standish, David Silva & Patricia Cabre will explore challenges that affect communication between Hemophilia Treatment Centre (HTC) team members and the patients and families whom they serve. Providers want their patients to understand, but sometimes, it seems that the message does […]