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Management of comorbidities in bleeding disorders | Virtual Summit 2020

In this session from WFH 2020 Virtual Summit, Mike Makris, Pal Andre Holme and Christine Kempton explore the incidence and management of the comorbidities of the aging people with hemophilia, with a focus on cardiovascular disease and osteoporosis. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]

Free papers: Late breaking 2 | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Saliou Diop, Ampaiwan Chuansumrit, Silvia Riva and Ahmad Tarawah discuss: “Connection between a local Registry and World Bleeding Disorders Registry: Automatic hemophilia patients’ data transfer” “Psychological status of older patients with hemophilia: results from the multicenter S+PHERA study” “Prevalence of bleeding symptoms among young adults in […]

Laboratory sciences: Replacement therapy and testing | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Emmanuel Favaloro, Robert Gosselin and Geoffrey Kershaw discuss: How the emergence of chromogenic factor VIII testing has illuminated both discrepancies between testing methods and potential issues associated with product potency assessment How the creation of B-domain deleted recombinant factor VIII replacement product has initiated […]

Laboratory sciences: Laboratory issues and testing | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Steve Kitchen, Stefen Tiefenbacher, Anna Lowe and Annette Bowyer discuss: Gene therapy for FVIII and FIX: Will there be laboratory assay issues? Laboratory issues with isolated emicizumab therapy Laboratory issues when emicizumab and FVIII replacement are combined The WFH does not engage in the practice of […]

WFH Highlight: Impact challenges of bleeding disorders in women and girls | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Rezan Abdul-Kadir, Roshni Kulkarni, Michelle Lavin, Robert Sidonio and Tahira Zafar highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. The speakers will address key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy […]

Healthy living | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Hariyati Shahrima, Richa Mohan, Sabrina Farina and Mina Nguyen-Driver discuss nutrition, fitness, sleep, self-esteem, ageing and sexuality. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, […]

Free papers: Young researchers | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Cedric Hermans, Geertje Goedhart, Patricio Cesar Gatti, Sandeep Albert, Tien-Truong Dang, Ozlem Turan and Glaivy Batsuli discuss: “The Dutch Haemophilia Registry HemoNED – building an Ecosystem” “Evaluation of treatment with dental implants in patients with hemophilia preliminary study” “Surgical management of a variety of haemophilic pseudotumours […]

Free papers: Orthopedic issues | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Adolfo Llinas, Cedric Hermans, Jenny Zhou, Ozgur Mert Bakan and Kumiko Ono discuss: “Confirmation of the very low rate of subclinical venous thrombosis in people with hemophilia undergoing major orthopedic surgery in the absence of pharmacological thromboprophylaxis” “Bleeding with iron deposition and vascular remodeling in subchondral […]

Emerging from COVID – Defining a new normal | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Declan Noone, Len Valentino, Kate Khair and Ed Kuebler discuss: “What can our patients expect in a ‘new normal’ “ “The changing environment in HTC’s and hospitals” “PTSD, other challenges, and help getting to the ‘new normal’” “Patient concerns and positive outcomes” The WFH does not […]

Medical plenary: Diagnosis | Virtual Summit 2020

In this plenary from the WFH 2020 Virtual Summit, Steve Kitchen, Alok Srivastava and Pierre Toulon discuss the combination of high BAT score followed by NGS-based genetic diagnosis could be the new paradigm for the primary diagnosis of inherited bleeding disorders. The WFH does not engage in the practice of medicine and under no circumstances […]

Free papers: Data collection and patient outcomes | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Mayss Naccache, Emily Ayoub, Toong Youttananukorn and Ellia Tootoonchian discuss: “The World Federation of Hemophilia World Bleeding Disorders Registry – 2 years update” “Data is the new currency: The World Bleeding Disorders Registry Data Quality Accreditation Program” “Report on the Annual Global Survey – 20 years […]

Free papers: VWD and Women’s issues | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Andra James, Mandy Yap, Mario von Depka Prondzinski, Lubna Zafar, Robert Sidonio and Roseline d’Oiron discuss: “The clinical usefulness of elongated platelet function analysis in characterizing Bleeding of Unknown Cause (BUC)” “Angiogenic alterations in VWD as a possible cause of epistaxis” “The menace of menorrhagia in […]