Healthy living | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Hariyati Shahrima, Richa Mohan, Sabrina Farina and Mina Nguyen-Driver discuss nutrition, fitness, sleep, self-esteem, ageing and sexuality. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, […]
Free papers: Young researchers | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Cedric Hermans, Geertje Goedhart, Patricio Cesar Gatti, Sandeep Albert, Tien-Truong Dang, Ozlem Turan and Glaivy Batsuli discuss: “The Dutch Haemophilia Registry HemoNED – building an Ecosystem” “Evaluation of treatment with dental implants in patients with hemophilia preliminary study” “Surgical management of a variety of haemophilic pseudotumours […]
WFH Highlight: WFH global initiative for better care of VWD | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Margaret Ragni, Augusto Federici, Roshni Kulkarni and Rezan Abdul-Kadir discuss practical ways to diagnose VWD that would work in all contexts around the world, and ways to educate the community on management. The WFH does not engage in the practice of medicine and under no circumstances […]
General plenary: Managing COVID-19 and bleeding disorders | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit was developed as an educational response to the COVID-19 pandemic for the global bleeding disorders community. Speakers Radoslaw Kaczmarek, Flora Peyvandi, Cedric Hermans and Mark Skinner discuss the pathophysiology and clinical manifestations of COVID-19, practical advice on the management of COVID-19, and safety and supply of plasma […]
Free papers: Orthopedic issues | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Adolfo Llinas, Cedric Hermans, Jenny Zhou, Ozgur Mert Bakan and Kumiko Ono discuss: “Confirmation of the very low rate of subclinical venous thrombosis in people with hemophilia undergoing major orthopedic surgery in the absence of pharmacological thromboprophylaxis” “Bleeding with iron deposition and vascular remodeling in subchondral […]
Emerging from COVID – Defining a new normal | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Declan Noone, Len Valentino, Kate Khair and Ed Kuebler discuss: “What can our patients expect in a ‘new normal’ “ “The changing environment in HTC’s and hospitals” “PTSD, other challenges, and help getting to the ‘new normal’” “Patient concerns and positive outcomes” The WFH does not […]
Medical plenary: Diagnosis | Virtual Summit 2020
In this plenary from the WFH 2020 Virtual Summit, Steve Kitchen, Alok Srivastava and Pierre Toulon discuss the combination of high BAT score followed by NGS-based genetic diagnosis could be the new paradigm for the primary diagnosis of inherited bleeding disorders. The WFH does not engage in the practice of medicine and under no circumstances […]
Free papers: Data collection and patient outcomes | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Mayss Naccache, Emily Ayoub, Toong Youttananukorn and Ellia Tootoonchian discuss: “The World Federation of Hemophilia World Bleeding Disorders Registry – 2 years update” “Data is the new currency: The World Bleeding Disorders Registry Data Quality Accreditation Program” “Report on the Annual Global Survey – 20 years […]
Free papers: VWD and Women’s issues | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Andra James, Mandy Yap, Mario von Depka Prondzinski, Lubna Zafar, Robert Sidonio and Roseline d’Oiron discuss: “The clinical usefulness of elongated platelet function analysis in characterizing Bleeding of Unknown Cause (BUC)” “Angiogenic alterations in VWD as a possible cause of epistaxis” “The menace of menorrhagia in […]
New technologies, psychosocial aspects and interdisciplinary dental care | Virtual Summit 2020
The Dental Committee is proud to present the dental track at the WFH Virtual Summit with a truly global representation of presenters, speaking on a broad range of topics related to the oral health of individuals with inherited bleeding disorders. The speakers for this session from the WFH 2020 Virtual Summit are Lochana Nanayakkara, Rebecca […]
Dental management and treatment | Virtual Summit 2020
The Dental Committee is proud to present the dental track at the WFH Virtual Summit with a truly global representation of presenters, speaking on a broad range of topics related to the oral health of individuals with inherited bleeding disorders. The speakers of this session are Lochana Nanayakkara, Norjehan Yahaya, Miryam Parreira, Daniel Sundaresan and […]
Connecting the global community through partnerships: WFH Twinning program | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Deniece Chevannes, Jayson Stoffman, Niamh O’Connell, John Sarmenta and Luisa Durante discuss the WFH twinning program. The Twinning Program creates short-term collaborative partnerships between medical professionals as well as patient and youth leaders in developing and developed countries for a period of two to four years. […]