Structure and Functions of Comprehensive Hemophilia Treatment Centres – Japanese

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病治療センター(HTC)は、ケアの極めて重要な要素です。このファクトシートでは、HTCがどのように設立され、それによって出血性疾患患者の全体的な健康および満足度がどのように向上するかを概説します。
Abstracts of the XXIX International Congress of the World Federation of Hemophilia

This special issue of Haemophilia contains abstracts presented at the XXIX WFH Congress, Buenos Aires, Argentina, 10-14 July 2010.
State of the Art XXIX International Congress of the World Federation of Hemophilia

This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXIX WFH Congress, Buenos Aires, Argentina, 10-14 July 2010.
Report on the Annual Global Survey 2009

Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
An Introduction to Key Concepts in Health Economics for Hemophilia Organizations

This publication aims to help patient organizations develop an understanding of health economics and advocate on issues relating to the economics of hemophilia care.
A Study of Reported Factor VIII Use Around the World

Presents data on the reported use of factor VIII (FVIII) per country. FVIII use varies considerably, even among the wealthiest countries, and increases with economic capacity.
A Study of Variations in the Reported Hemophilia A Prevalence Around the World

An analysis of the global prevalence of hemophilia A, based in large part on the WFH’s Global Survey Data. Prevalence data are extremely valuable information for the planning efforts of national healthcare agencies in setting priorities and allocating resources for the treatment of hemophilia B.
Joint Replacement Surgery in Hemophilia

A comprehensive, multidisciplinary overview of the key issues in joint replacement surgery, from pre-operative assessment to long-term management.
HemoAction Card Game – Arabic

This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Using the universal language of pictures, children around the world can learn about hemophilia in a fun, easy to understand, and interactive way. The HemoAction cards teach children how to prevent bleeds and manage hemophilia. Each HemoAction […]
Report on the Annual Global Survey 2008

Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Proceedings of the WFH’s Sixth Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders

A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Reproductive Health in Women with Bleeding Disorders

Reviews the common obstetric and gynecological challenges in women with bleeding disorders and offers guidelines for their management.