Report on the Annual Global Survey 2011
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
How to Write and Publish a Research Paper in Haemophilia
Since hemophilia is a rare disorder, publication of a research paper relating to hemophilia is sometimes difficult to achieve in mainstream journals. This monograph focuses on publication in the journal Haemophilia, which has the specialized readership of the hemophilia community, and gives many helpful tips for first-time authors.
Guidelines for the Management of Hemophilia
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese For additional resources, such […]
Fibrinolytic Inhibitors in the Management of Bleeding Disorders
A description of the mechanism of action of fibrinolytic inhibitors and their use in the treatment of inherited bleeding disorders including hemophilia A and B, von Willebrand disease, and platelet disorders.
Rehabilitation of Muscle Dysfunction in Hemophilia
This paper describes physiotherapy management following acute muscle bleeds and the assessment and treatment of muscle imbalances that may occur in hemophilia.
Report on the Annual Global Survey 2010
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Structure and Functions of Comprehensive Hemophilia Treatment Centres
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Proceedings of the WFH’s Seventh Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
A Study of Reported Factor IX Use Around the World
Presents data on the reported use of factor IX (FIX) per country. FIX use varies considerably, even among the wealthiest countries, and increases with economic capacity. Trends also suggest that consumption of FIX has been increasing at a greater rate in high-income countries.
A Study of Variations in the Reported Hemophilia B Prevalence Around the World
An analysis of the global prevalence of hemophilia B, based in large part on the WFH’s Global Survey Data. Prevalence data are extremely valuable information for the planning efforts of national healthcare agencies in setting priorities and allocating resources for the treatment of hemophilia B.
Assessment and Management of Pain in Hemophilia Patients
This monograph highlights the prevalence and devastating impact of pain in hemophilia patients, reviews currently available treatment options, and identifies the unmet needs for appropriate pain management.
HCV-Related Liver Cancer in People with Hemophilia
A review of the epidemiology, risk factors, treatment, and outcomes of liver cancer associated with chronic hepatitis C infection, with a focus on aspects that are of specific interest in people with hemophilia.