Psychosocial Care for People with Hemophilia
Psychosocial support is an important part of comprehensive care for people with hemophilia. The aim of this monograph is to guide parents and healthcare providers in the interventions and support that can be provided at all stages of development, from birth to adulthood.
Guidelines for the Management of Hemophilia – Portuguese
The 3rd edition is available in: English, French, Spanish, Arabic, Russian The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the […]
Frequently Asked Questions on Women and Girls with Bleeding Disorders – German
This document is also available in: English, French, Spanish This is not an official WFH translation. This resource has been translated with permission, and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for any errors or […]
Psychosocial Resource Hub
The WFH Virtual Workshops for Psychosocial Professionals series was developed in collaboration with the WFH Psychosocial Committee. The series targets professionals who work with people with bleeding disorders and aims to provide useful and practical tools for their work. The topics covered in this educational series are based on the modules of the WFH Standardized […]
What is Prophylaxis?
The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Setswana This patient handbook contains basic information about prophylaxis, the regular infusion of clotting factor concentrates in order to prevent bleeding. Prophylaxis is the goal of treatment for people with severe hemophilia, allowing […]
Strengthening comprehensive care: using data to inform clinical practice | November 11 2021
Listen to this 90-minute webinar, Strengthening comprehensive care: using data to inform clinical practice, presented on November 11, 2021. This is the last webinar in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. Speakers included Dr. Catherine Lambert (Hematologist at the Division of […]
Report on the Annual Global Survey 2020
The Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world.
Delivering comprehensive care: practical considerations | October 21 2021
Listen to this 90-minute webinar, Delivering comprehensive care: practical considerations, presented on October 21, 2021. This is the second of three webinars in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. The session was moderated by Dr. Miguel Escobar (WFH Board of Directors). […]
Setting up comprehensive care: key principles, services, and roles | September 29, 2021
Listen to this 90-minute webinar, Setting up comprehensive care: key principles, services, and roles, presented on September 29, 2021, the first of 3 webinars in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. The session was moderated by Dr. Alok Srivastava (Professor in […]
Hemophilia in Pictures – Indonesian
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese TThis is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for […]
Key Concepts and Principles of Care for Bleeding Disorders | July 28, 2021
Listen to this back-to-basics 90-minute webinar, presented on July 28, 2021, which offers members of NMOs the opportunity to get a refresher on the key concepts and principles of care for inherited bleeding disorders. The webinar program also covers foundational knowledge on topics relevant for NMO members and advocates. This webinar was chaired by Carlos […]
Proceedings of the WFH’s Eleventh Global Forum on Research and Treatment Products for Bleeding Disorders
A summary of discussions held at the Eleventh WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, industry representatives, and not-for-profit fractionators.