A Journey of the Heart
Social workers from around the United States and Canada were asked to write from their hearts about a patient or a mentor who has profoundly impacted their work with adults and children in the bleeding disorders community. This collection of essays aims to share these stories with the community at large as a way to […]
Proceedings of the WFH’s Eighth Global Forum on the Safety and Supply of Treatment Products for Bleeding Disorders
A summary of discussions held at the World Federation of Hemophilia’s Global Forum on the Safety and Supply of Hemophilia Treatment Products, which brings together patient groups, healthcare providers, regulators, industry representatives, and not-for-profit fractionators.
Report on the Annual Global Survey 2012
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2011
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
How to Write and Publish a Research Paper in Haemophilia
Since hemophilia is a rare disorder, publication of a research paper relating to hemophilia is sometimes difficult to achieve in mainstream journals. This monograph focuses on publication in the journal Haemophilia, which has the specialized readership of the hemophilia community, and gives many helpful tips for first-time authors.
Guidelines for the Management of Hemophilia
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition is available in: Simplified Chinese The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese For additional resources, such […]
Fibrinolytic Inhibitors in the Management of Bleeding Disorders
A description of the mechanism of action of fibrinolytic inhibitors and their use in the treatment of inherited bleeding disorders including hemophilia A and B, von Willebrand disease, and platelet disorders.
Desmopressin (DDAVP) in the Treatment of Bleeding Disorders
This report reviews the spectrum of indications of desmopressin in the treatment of bleeding disorders.
Carriers and Women with Hemophilia – Japanese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana, Traditional Chinese 多くの血友病保因者も血友病の症状を経験します。なかには何年も出血性疾患と診断されたり疑われたりすることのないまま暮らしている女性もいます。
Report on the Annual Global Survey 2010
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Structure and Functions of Comprehensive Hemophilia Treatment Centres
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Structure and Functions of Comprehensive Hemophilia Treatment Centres – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病治療センター（HTC）は、ケアの極めて重要な要素です。このファクトシートでは、HTCがどのように設立され、それによって出血性疾患患者の全体的な健康および満足度がどのように向上するかを概説します。