Report on the Annual Global Survey 2006
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Benefits of a National Patient Registry
Also Available In: Japanese Patient registries are crucial for monitoring trends in health, allocating resources, organizing and tracking distribution of treatment products, and improving the purchasing process on a national scale.
Benefits of a National Patient Registry – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 患者登録は、健康上の傾向のモニタリング、資源の割り当て、治療用製剤供給の調整および追跡、全国規模での購入プロセスの改善に極めて重要です。
Abstracts of the XXVII International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains abstracts presented at the XXVII WFH Congress, Vancouver, Canada, 21-25 May 2006.
State of the Art XXVII International Congress of the World Federation of Hemophilia
This special issue of Haemophilia contains reviews and original research reports from selected scientific sessions presented at the XXVII WFH Congress, Vancouver, Canada, 21-25 May 2006.
Report on the Annual Global Survey 2005
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Guidelines for Dental Treatment of Patients with Inherited Bleeding Disorders
The purpose of these guidelines is to provide a basis for the development of local protocols for the dental treatment of patients with inherited bleeding disorders. The publication highlights the use of local hemostatic techniques to make judicious use of the amount of clotting factor concentrates used.
The Rare Coagulation Disorders
A quick overview of the epidemiology, diagnosis, and treatment of each of the rare factor deficiencies.
Report on the Annual Global Survey 2004
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Economic Benefits of Home Therapy
Also Available In: Japanese Access to home treatment reduces the economic impact on healthcare systems and improves the quality of life for both the person with hemophilia and their family.
Guide to Developing a National Patient Registry
Having a national patient registry means being able to answer fundamental questions about the hemophilia population within a given country. This step-by-step guide outlines the basic principles of data collection, maintenance, and analysis and compares different types of registries.
Treatment Options in the Management of Hemophilia in Developing Countries
Highlights the various options available when treatment products are extremely scarce. Even with a limited amount of coagulation factor, it is possible to improve the lives of people with hemophilia in the developing world.