Report on the Annual Global Survey 2007
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
Patient Outreach Guide for Hemophilia and Other Bleeding Disorders
This guide helps national hemophilia organizations plan and carry out an outreach campaign to identify people with hemophilia or other bleeding disorders who have not been diagnosed or are underserved by healthcare services.
Advantages of a National Tender System for Clotting Factor Concentrates
Also Available In: Japanese A national tender is a cost-effective system for the purchase of products or services, such as clotting factor concentrates, that facilitates the prediction of demand and use of treatment products and can lead to a higher standard of care.
Hemophilia in Pictures Educator’s Guide
Also Available In: Japanese A companion to Hemophilia in Pictures, this Educator’s guide provides more detailed information for advanced learning. Also includes tips for effective patient education, key talking points, and review quizzes.
Local Hemostatic Blood Products in Hemophilia Care: Fibrin Sealant and Platelet Gel
Describes the manufacturing methods and characteristics of hemostatic products and their clinical indications for patients suffering with disorders.
Oral Care for People with Hemophilia or a Hereditary Bleeding Tendency
Oral disease may affect general health and may, in people with a bleeding tendency, cause serious bleeding. This paper offers valuable information on preventative tooth and gum care for people with hemophilia and other bleeding disorders.
Platelet Function Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Russian A discussion of platelet physiology and the mechanisms of platelet activation as pertains to the diagnosis and management of platelet function disorders.
Factor XI Deficiency and its Management
A comprehensive overview of factor XI deficiency, the most common of the rare bleeding disorders.
Hereditary Plasma Clotting Factor Disorders and their Management
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Russian This monograph provides an overview of the most common types of hereditary bleeding disorders, general principles of care, treatment options, and management of complications.
What is von Willebrand Disease? – Japanese
The 2023 edition is available in: English This edition is also available in: Spanish, French, Arabic, Russian, Simplified Chinese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana この患者向けハンドブックには、フォン・ヴィレブランド病の遺伝特性、診断、症状、管理についての基本情報が記載されています。
Advantages of a National Tender System for Clotting Factor Concentrates – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 国ごとの国家入札制度は、凝固因子製剤等の製品やサービスを購入するコスト効率の高い制度で、治療用製剤の需要や使用量の予測を促進し、より高水準な治療を可能にします。
What is von Willebrand Disease? – Polish
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Farsi, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and […]