General plenary: Managing COVID-19 and bleeding disorders | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit was developed as an educational response to the COVID-19 pandemic for the global bleeding disorders community. Speakers Radoslaw Kaczmarek, Flora Peyvandi, Cedric Hermans and Mark Skinner discuss the pathophysiology and clinical manifestations of COVID-19, practical advice on the management of COVID-19, and safety and supply of plasma […]
Emerging from COVID – Defining a new normal | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Declan Noone, Len Valentino, Kate Khair and Ed Kuebler discuss: “What can our patients expect in a ‘new normal’ “ “The changing environment in HTC’s and hospitals” “PTSD, other challenges, and help getting to the ‘new normal’” “Patient concerns and positive outcomes” The WFH does not […]
COVID-19 Vaccines and People with Bleeding Disorders: Safety and Accessibility
Listen to this 90-minute webinar presented on June 2, 2021 to learn about the latest WFH updates on COVID-19 vaccination for people with bleeding disorders. The webinar provided an opportunity for attendees to learn about the authorization and safety of COVID-19 vaccines, with a focus on the regulators’ perspectives from the EU and the U.S.A., […]
COVID-19 Treatment and Vaccination for PWBDs
Listen to this 90-minute webinar presented on March 12, 2021 to learn about the latest WFH guidance regarding COVID-19 treatment and vaccination for People with Bleeding Disorders (PWBDs). The objective of this webinar was to address questions related to COVID-19 in PWBD. It provided an opportunity for attendees to follow the latest WFH recommendations for […]
Advocacy during COVID-19: what can we do in Africa? – Portuguese
The COVID-19 pandemic has significantly affected the bleeding disorders community, and many countries have seen their governments shift their focus and resources to combating the pandemic. It is important for NMOs to remain aware of the changes in government priorities and take a proactive approach to ensure that the needs of the local bleeding disorders […]
Advocacy during COVID-19: what can we do in Africa?
The COVID-19 pandemic has significantly affected the bleeding disorders community, and many countries have seen their governments shift their focus and resources to combating the pandemic. It is important for NMOs to remain aware of the changes in government priorities and take a proactive approach to ensure that the needs of the local bleeding disorders […]
Advocacy During COVID-19: Voices from Europe
Listen to this 1-hour webinar that took place on 27 November 2020, chaired by Baiba Zimele (WFH lay member). Presenters Ellia Tootoonchian (WFH) and Donna Coffin (WFH) discuss the latest data of the Annual Global Survey including patient demographics, while Brian O’Mahony (Ireland), Dejan Petrovic (Serbia) and Dr. James Gauci (Malta) provide information on advocacy […]
Webinar for the Middle East | Effective Patient Education Programs for Bleeding Disorders
Patient Education is a core function of the work of any national member organization (NMO). It plays a vital role in enhancing patient care and outcomes. An educated patient is not only better able to manage their condition, but they are also better placed to support NMO efforts in advocating for improved access to care […]
Advocacy During Covid-19: Having our Voices Heard
This 90-minute webinar on advocacy for National Member Organizations (NMOs) took place on October 27th, 2020. Dr. Alexsandro dos Santos Machado (Brazil), Dr. Munira Borhany (Pakistan) and James Kago (Kenya) discussed the advocacy challenges and activities of their NMOs during the COVID-19 pandemic. WFH Board Member Dawn Rotellini (USA) moderated the session and provided different advocacy […]
Collaborations, Connections and COVID19: Twinning Stories from Near and Far
This 1-hour webinar was moderated by Deniece Chevannes (USA), Chair of the HOT Twinning Committee on September 17, 2020. Patricia Silva, MD (Mozambique), Yuri Zhulyov (Russia), and Santosh Manivannan (India) discussed how their Twinning partnerships are coping with the COVID-19 pandemic. Stephanie Pineda, WFH Program Coordinator, presented Twinning Program highlights. The webinar also includes a […]
Youth Resilience During COVID-19 – Staying Strong Together!
Listen to this 1-hour webinar that took place on 3 September 2020 to learn stories of youth engagement around the world and wellness tips from a psychosocial expert. The panel of youth speakers included Salomón Cárcamo Bonilla (Honduras), Jessica Page (U.K.) and Jodarsen P. Arnachellum (Mauritius). Edward Kuebler (U.S.A), outgoing WFH Psychosocial Committee chair, provided […]
Maintaining joint health for people with bleeding disorders during COVID-19
Listen to this 1-hour webinar presented on 30 July 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Presenters Greig Blamey (Canada), WFH MSK Committee Chair; Cesar Haddad (Lebanon), WFH MSK Committee Junior Vice Chair; Pamela Narayan (India), physiotherapist and WFH volunteer, and Andrew Selvaggi (Australia), a person with hemophilia and a personal trainer; […]