HIV and HCV Co-Infection in Hemophilia
This paper provides an overview of the interactions between hepatitis C (HCV) and the human immunodeficiency virus (HIV) and covers aspects concerning the management of co-infected persons with hemophilia.
Oral Care for People with Hemophilia or a Hereditary Bleeding Tendency
Oral disease may affect general health and may, in people with a bleeding tendency, cause serious bleeding. This paper offers valuable information on preventative tooth and gum care for people with hemophilia and other bleeding disorders.
Conception in HIV-Discordant Couples
Discusses the relative merits of the alternative methods of conception that are available to HIV-infected hemophilic men and their partners.
Articular Bleeding (Hemarthrosis) in Hemophilia: An Orthopedist’s Point of View
Strategies for the prevention and proper management of acute, subacute, and recurrent hemarthrosis.
Platelet Function Disorders
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Russian A discussion of platelet physiology and the mechanisms of platelet activation as pertains to the diagnosis and management of platelet function disorders.
Factor XI Deficiency and its Management
A comprehensive overview of factor XI deficiency, the most common of the rare bleeding disorders.
Protocols for the Treatment of Hemophilia and von Willebrand Disease
This monograph outlines the treatment protocol used by healthcare providers in Georgia, U.S.A., as an example of a strategy to provide quality standards of care for the management of hemophilia.
Hereditary Plasma Clotting Factor Disorders and their Management
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Russian This monograph provides an overview of the most common types of hereditary bleeding disorders, general principles of care, treatment options, and management of complications.
Manufactured Shoes and Orthopedic Shoes – Japanese
Also Available In: English, Spanish This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for […]
Emergency Care Issues in Hemophilia
People with hemophilia are at risk for severe bleeding that may require emergency care. This monograph discusses a number of potential emergent hemorrhagic events, focusing on therapeutic strategies to reduce the risk of adverse outcomes.
Developing and Sustaining an Effective Lobbying Campaign
A hemophilia organization can advocate for change with doctors, hospitals, health authorities, government officials, or politicians. This publication outlines the various steps in putting together an integrated lobbying strategy.
Good Governance
Not-for-profit organizations like hemophilia organizations need to perform to a very high professional level in order to meet the standards set by governments, regulators, industry, and others with whom they associate.