Since hemophilia is a rare disorder, publication of a research paper relating to hemophilia is sometimes difficult to achieve in mainstream journals. This monograph focuses on publication in the journal Haemophilia, which has the specialized readership of the hemophilia community, and gives many helpful tips for first-time authors.
A description of the mechanism of action of fibrinolytic inhibitors and their use in the treatment of inherited bleeding disorders including hemophilia A and B, von Willebrand disease, and platelet disorders.
A discussion of the mild forms of hemophilia A and hemophilia B, from epidemiology and molecular basis, via diagnosis, to the treatment options available.
Acquired hemophilia is a rare condition caused by the production of autoantibodies, which inactivate factor VIII. This paper provides an overview of this condition that affects both men and women, its clinical features, epidemiology, laboratory diagnosis, and management.
This paper describes physiotherapy management following acute muscle bleeds and the assessment and treatment of muscle imbalances that may occur in hemophilia.
This report reviews the spectrum of indications of desmopressin in the treatment of bleeding disorders.
Outlines the common challenges faced by hemophilia societies at various stages of development and offers practical solutions to help these organizations meet the needs of people with bleeding disorders.
Presents data on the reported use of factor IX (FIX) per country. FIX use varies considerably, even among the wealthiest countries, and increases with economic capacity. Trends also suggest that consumption of FIX has been increasing at a greater rate in high-income countries.
An analysis of the global prevalence of hemophilia B, based in large part on the WFH’s Global Survey Data. Prevalence data are extremely valuable information for the planning efforts of national healthcare agencies in setting priorities and allocating resources for the treatment of hemophilia B.
This monograph highlights the prevalence and devastating impact of pain in hemophilia patients, reviews currently available treatment options, and identifies the unmet needs for appropriate pain management.
A review of the epidemiology, risk factors, treatment, and outcomes of liver cancer associated with chronic hepatitis C infection, with a focus on aspects that are of specific interest in people with hemophilia.
This publication aims to help patient organizations develop an understanding of health economics and advocate on issues relating to the economics of hemophilia care.