Action Planning
An effective action plan helps organizations, and charitable organizations in particular, achieve results: monitor progress, maintain control, give people responsibility, strengthen accountability, and build greater teamwork through a sense of involvement.
A Study of Reported Factor VIII Use Around the World
Presents data on the reported use of factor VIII (FVIII) per country. FVIII use varies considerably, even among the wealthiest countries, and increases with economic capacity.
A Study of Variations in the Reported Hemophilia A Prevalence Around the World
An analysis of the global prevalence of hemophilia A, based in large part on the WFH’s Global Survey Data. Prevalence data are extremely valuable information for the planning efforts of national healthcare agencies in setting priorities and allocating resources for the treatment of hemophilia B.
Joint Replacement Surgery in Hemophilia
A comprehensive, multidisciplinary overview of the key issues in joint replacement surgery, from pre-operative assessment to long-term management.
Media Relations
Hemophilia organizations may not have the resources to hire a communications professional or fund an ambitious communications and media strategy. However, all can benefit from forming a relationship with the local and perhaps even national media.
Group Dynamics and Team Building
An overview of the theories and techniques related to group dynamics and team building. Includes a description of the stages of team development, suggestions for achieving group consensus, and instructions for facilitating two team-building activities.
Creutzfeldt-Jakob Disease
This paper reviews the epidemiology and transmission of variant Creutzfeldt-Jakob disease and the potential risk to the bleeding disorders community.
Manufactured Shoes and Orthopedic Shoes
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Japanese To fulfill its critical functions of protection and support, a shoe should fit properly. For people with musculoskeletal problems, certain adaptations such as heel pads, inlays, and rocker bottoms are possible and advisable.
Contract Fractionation
A comprehensive guide to creating and maintaining a successful contract fractionation program, from contract agreements to the fractionation process, the roles of national health officials and foreign fractionators, and other technical, regulatory, and economical considerations.
Dental Management of Patients with Inhibitors to Factor VIII or Factor IX
Suggests management strategies that reduce the need for dental intervention or allow treatment without the need for prophylactic coagulation factor cover.
Local Hemostatic Blood Products in Hemophilia Care: Fibrin Sealant and Platelet Gel
Describes the manufacturing methods and characteristics of hemostatic products and their clinical indications for patients suffering with disorders.
The Basic Science, Diagnosis, and Clinical Management of von Willebrand Disease
Offers a detailed review of the basic science, clinical features, and classification of the various forms of von Willebrand Disease, as well as its diagnosis and management.