WFH Development Grant Program Webinar
This 1-hour webinar on the WFH Development Grant Program is presented by Dawn Rotellini (Chair, Development Grants Selection Committee) and Salome Mekhuzla (WFH Director, Global Development). The Development Grant Program aims to encourage new and innovative projects to support the inherited bleeding disorders community worldwide. This webinar provides WFH NMOs with an overview of the […]
Advocacy During Covid-19: Having our Voices Heard
This 90-minute webinar on advocacy for National Member Organizations (NMOs) took place on October 27th, 2020. Dr. Alexsandro dos Santos Machado (Brazil), Dr. Munira Borhany (Pakistan) and James Kago (Kenya) discussed the advocacy challenges and activities of their NMOs during the COVID-19 pandemic. WFH Board Member Dawn Rotellini (USA) moderated the session and provided different advocacy […]
Collaborations, Connections and COVID19: Twinning Stories from Near and Far
This 1-hour webinar was moderated by Deniece Chevannes (USA), Chair of the HOT Twinning Committee on September 17, 2020. Patricia Silva, MD (Mozambique), Yuri Zhulyov (Russia), and Santosh Manivannan (India) discussed how their Twinning partnerships are coping with the COVID-19 pandemic. Stephanie Pineda, WFH Program Coordinator, presented Twinning Program highlights. The webinar also includes a […]
Youth Resilience During COVID-19 – Staying Strong Together!
Listen to this 1-hour webinar that took place on 3 September 2020 to learn stories of youth engagement around the world and wellness tips from a psychosocial expert. The panel of youth speakers included Salomón Cárcamo Bonilla (Honduras), Jessica Page (U.K.) and Jodarsen P. Arnachellum (Mauritius). Edward Kuebler (U.S.A), outgoing WFH Psychosocial Committee chair, provided […]
WFH Global VWD Call to Action: The World’s Response
Listen to this webinar which took place on August 26, 2020. Moderated by Dawn Rotellini (USA), the webinar features an overview of von Willebrand Disease by Magdy El Ekiaby, MD (Egypt), information about the Global VWD Call to Action by Luisa Durante (Canada), and presentations by Chedia Aroua (Tunisia), Cassie Osejo (Panama), and Louise Ellwood […]
Maintaining joint health for people with bleeding disorders during COVID-19
Listen to this 1-hour webinar presented on 30 July 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Presenters Greig Blamey (Canada), WFH MSK Committee Chair; Cesar Haddad (Lebanon), WFH MSK Committee Junior Vice Chair; Pamela Narayan (India), physiotherapist and WFH volunteer, and Andrew Selvaggi (Australia), a person with hemophilia and a personal trainer; […]
Dental care for people with bleeding disorders during COVID-19— what has changed?
Listen to this 1-hour webinar presented on 3 June 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Presenters Maria Elvira Pizzigatti Correa (Brazil), WFH Dental Committee member; Zikra Alkhayal (Saudi Arabia), WFH Dental Committee member; and Alison Dougall (Ireland), past Chair of the WFH Dental Committee offer recommendations on how to deal with […]
Stepping up and not stepping out: a nursing and psychosocial perspective to COVID-19
Listen to this 1-hour webinar presented on 4 May 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Kate Khair (U.K.), WFH Nurses Committee chair and Marlène Beijlevelt (Netherlands), WFH Nurses Committee member, presented a nursing perspective on how to deal with the current pandemic. Ed Kuebler (U.S.A), WFH Psychosocial Committee chair and Richa […]
WFH Webinar: Bleeding Disorders and COVID-19
Listen as Glenn Pierce, MD, PhD (WFH VP Medical), Flora Peyvandi, MD, PhD, Magdy El Ekiaby, MD, Cedric Hermans, MD, PhD, and Radoslaw Kaczmarek, PhD, provide the global bleeding disorders community with up-to-date information on COVID-19. This 1-hour webinar, presented on April 9, 2020, also addressed participants’ questions and concerns. To download a pdf of […]
Hemophilia, relationships and intimacy: answering your questions
In this short video, Luis Melgar, a young man with a bleeding disorder, discusses some common questions regarding relationships, intimacy, and sexuality with WFH psychosocial and musculoskeletal experts Frederica Cassis and Greig Blamey. Covering topics such as dating, kissing, disclosing a bleeding disorder, sexual health, and marriage and having children, their casual conversation may answer […]
Recommendations for management of pregnancy and delivery in women with inherited bleeding disorders
In the Sunday morning session entitled Women and Bleeding Disorders, Sue Pavord talks about the UK Guidelines for the management of inherited bleeding disorders in pregnancy and gives an overview of the recommendations included for hemophilia, von Willebrand Disease, rare factor deficiencies, and platelet function disorders.
Chromogenic Factor IX Assay in Laboratory Diagnosis and Monitoring of Treatment in Hemophilia B – To be aware of Challenges
In the Tuesday afternoon session entitled Chromogenic Factor IX Assay in Laboratory Diagnosis and Monitoring of Treatment in Hemophilia B – To be Aware of Challenges, Jovan Antovic presents data comparing one-stage assays with chromogenic assays for quantifying clotting factor activity, focusing on the challenges presented by their use in diagnosis.