This session from the WFH 2020 Virtual Summit was developed as an educational response to the COVID-19 pandemic for the global bleeding disorders community. Speakers Radoslaw Kaczmarek, Flora Peyvandi, Cedric Hermans and Mark Skinner discuss the pathophysiology and clinical manifestations of COVID-19, practical advice on the management of COVID-19, and safety and supply of plasma […]
This workshop from the WFH 2020 Virtual Summit, presented by Ellia Tootoonchian, Mark Skinner, Donna Coffin, Alfonso Iorio, Emna Gouider-Belhadjali and Jeff Stonebraker, is intended for healthcare professionals engaged in clinical research and patient leaders and organizations who have an active interest in using health data in their work. The WFH does not engage in […]
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese, Japanese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not […]
In the Monday afternoon session entitled Rare Bleeding Disorders, Gillian Gidley reviews the genotypes and phenotypes associated with FXI deficiency, shows data on different diagnostic assays, and covers recommendations for management of patients with FXI deficiency.
In the Monday afternoon session entitled Rare Bleeding Disorders, Flora Peyvandi gives an overview of RBDs in Europe and discusses current technical limitations in laboratory testing, presents current treatments, and also discusses novel treatment strategies.
Adapted from: Global NMO Training 2016 plenary presentation by Glenn PierceReviewed by: Glenn PierceEdited by: Georghia Michael This first eLearning module of the Treatment Products program explains how blood clots, how clotting factors work together in the coagulation cascade, what goes wrong in the case of factor deficiency, and how factor replacement therapy works by […]
In the Wednesday morning session on rare and ultra-rare bleeding disorders, Diane Nugent presents work on FXIII deficiency.
In the Wednesday morning medical plenary session, Andrew Mumford presents an overview of the genomics of platelet disorders.
In the Wednesday morning session on rare and ultra-rare bleeding disorders, Jean-François Schved discusses FVII deficiency, one of the more frequent rare bleeding disorders, from the fundamentals to the bedside.
Also Available In: Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of rare coagulation factor deficiencies.