General plenary: Managing COVID-19 and bleeding disorders | Virtual Summit 2020

This session from the WFH 2020 Virtual Summit was developed as an educational response to the COVID-19 pandemic for the global bleeding disorders community. Speakers Radoslaw Kaczmarek, Flora Peyvandi, Cedric Hermans and Mark Skinner discuss the pathophysiology and clinical manifestations of COVID-19, practical advice on the management of COVID-19, and safety and supply of plasma […]

Better data, better patient outcomes: 20 years of data collection | Virtual Summit 2020

This workshop from the WFH 2020 Virtual Summit, presented by Ellia Tootoonchian, Mark Skinner, Donna Coffin, Alfonso Iorio, Emna Gouider-Belhadjali and Jeff Stonebraker, is intended for healthcare professionals engaged in clinical research and patient leaders and organizations who have an active interest in using health data in their work. The WFH does not engage in […]

What are Rare Clotting Factor Deficiencies? – Traditional Chinese

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese, Japanese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not […]

FXI Deficiency: Genotype, Phenotype and Management

In the Monday afternoon session entitled Rare Bleeding Disorders, Gillian Gidley reviews the genotypes and phenotypes associated with FXI deficiency, shows data on different diagnostic assays, and covers recommendations for management of patients with FXI deficiency.

Introduction to Bleeding Disorders

Adapted from: Global NMO Training 2016 plenary presentation by Glenn PierceReviewed by: Glenn PierceEdited by: Georghia Michael This first eLearning module of the Treatment Products program explains how blood clots, how  clotting factors work together in the coagulation cascade, what goes wrong in the case of factor deficiency, and how factor replacement therapy works by […]

Factor FXIII Deficiency

In the Wednesday morning  session on rare and ultra-rare bleeding disorders, Diane Nugent presents work on FXIII deficiency.

Genomics of Platelet Disorders

In the Wednesday morning medical plenary session, Andrew Mumford presents an overview of the genomics of platelet disorders.

Factor VII: From fundamental to bedside

In the Wednesday morning session on rare and ultra-rare bleeding disorders, Jean-François Schved discusses FVII deficiency, one of the more frequent rare bleeding disorders, from the fundamentals to the bedside.

What are Rare Clotting Factor Deficiencies?

Also Available In: Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of rare coagulation factor deficiencies.