Genetic Counselling for Hemophilia
Genetic counselling constitutes an integral part of the comprehensive hemophilia care team providing people with hemophilia, and their families, clinical and scientific information, supporting individuals through the decision-making process regarding prenatal and carrier testing, and offering individualized psychosocial assessment and counselling before and after genetic testing. This resource introduces genetic counsellors, the genetic counselling process, […]
Structure and Functions of Comprehensive Hemophilia Treatment Centres
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Structure and Functions of Comprehensive Hemophilia Treatment Centres – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病治療センター（HTC）は、ケアの極めて重要な要素です。このファクトシートでは、HTCがどのように設立され、それによって出血性疾患患者の全体的な健康および満足度がどのように向上するかを概説します。
Dental Management of Patients with Inhibitors to Factor VIII or Factor IX
Suggests management strategies that reduce the need for dental intervention or allow treatment without the need for prophylactic coagulation factor cover.
Manufactured Shoes and Orthopedic Shoes – Japanese
Also Available In: English, Spanish This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for […]
Guidelines for Dental Treatment of Patients with Inherited Bleeding Disorders
The purpose of these guidelines is to provide a basis for the development of local protocols for the dental treatment of patients with inherited bleeding disorders. The publication highlights the use of local hemostatic techniques to make judicious use of the amount of clotting factor concentrates used.
Economic Benefits of Comprehensive Hemophilia Care
Also Available In: Japanese Patients receiving comprehensive hemophilia care have a lower mortality rate and a lower hospitalization rate for bleeding complications than those treated outside a hemophilia treatment centre.
Economic Benefits of Comprehensive Hemophilia Care – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病医療を受けている患者は、血友病治療センター以外の医療機関で治療を受けた患者よりも死亡率が低く、出血の合併症による入院率が低くなっています。
Key Issues in Hemophilia Treatment Part 2: Organizing a National Programme for Comprehensive Hemophilia Care
Addresses the considerations for establishing a national programme for comprehensive hemophilia care.
Musculoskeletal Complications of Hemophilia: The Joint
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Japanese, Russian This monograph describes the effects of acute and recurrent bleeding on joint health and offers strategies to preserve joint function.
Musculoskeletal Complications of Hemophilia: The Joint – Japanese
Also Available In: English, Spanish, Arabic This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or […]