Dental care for people with bleeding disorders during COVID-19— what has changed?
Listen to this 1-hour webinar presented on 3 June 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Presenters Maria Elvira Pizzigatti Correa (Brazil), WFH Dental Committee member; Zikra Alkhayal (Saudi Arabia), WFH Dental Committee member; and Alison Dougall (Ireland), past Chair of the WFH Dental Committee offer recommendations on how to deal with […]
Stepping up and not stepping out: a nursing and psychosocial perspective to COVID-19
Listen to this 1-hour webinar presented on 4 May 2020, chaired by Glenn Pierce, MD, PhD (WFH VP Medical). Kate Khair (U.K.), WFH Nurses Committee chair and Marlène Beijlevelt (Netherlands), WFH Nurses Committee member, presented a nursing perspective on how to deal with the current pandemic. Ed Kuebler (U.S.A), WFH Psychosocial Committee chair and Richa […]
Hemophilia, relationships and intimacy: answering your questions
In this short video, Luis Melgar, a young man with a bleeding disorder, discusses some common questions regarding relationships, intimacy, and sexuality with WFH psychosocial and musculoskeletal experts Frederica Cassis and Greig Blamey. Covering topics such as dating, kissing, disclosing a bleeding disorder, sexual health, and marriage and having children, their casual conversation may answer […]
Special Management Issues
This eLearning module presents Section 2 of the WFH Guidelines for the Management of Hemophilia: Special Management Issues. Detailed illustrations, interactive features, a glossary, supplementary resources and self-quizzes bring to life the WFH recommendations regarding carriers, genetic testing and counselling, prenatal diagnosis, childbirth, vaccinations, psychosocial issues, sexuality, and ageing for people with hemophilia. Instructions Click […]
Genetic Counselling for Hemophilia
Genetic counselling constitutes an integral part of the comprehensive hemophilia care team providing people with hemophilia, and their families, clinical and scientific information, supporting individuals through the decision-making process regarding prenatal and carrier testing, and offering individualized psychosocial assessment and counselling before and after genetic testing. This resource introduces genetic counsellors, the genetic counselling process, […]
Structure and Functions of Comprehensive Hemophilia Treatment Centres
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Structure and Functions of Comprehensive Hemophilia Treatment Centres – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病治療センター（HTC）は、ケアの極めて重要な要素です。このファクトシートでは、HTCがどのように設立され、それによって出血性疾患患者の全体的な健康および満足度がどのように向上するかを概説します。
Dental Management of Patients with Inhibitors to Factor VIII or Factor IX
Suggests management strategies that reduce the need for dental intervention or allow treatment without the need for prophylactic coagulation factor cover.
Manufactured Shoes and Orthopedic Shoes – Japanese
Also Available In: English, Spanish This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or for […]
Guidelines for Dental Treatment of Patients with Inherited Bleeding Disorders
The purpose of these guidelines is to provide a basis for the development of local protocols for the dental treatment of patients with inherited bleeding disorders. The publication highlights the use of local hemostatic techniques to make judicious use of the amount of clotting factor concentrates used.
Economic Benefits of Comprehensive Hemophilia Care
Also Available In: Japanese Patients receiving comprehensive hemophilia care have a lower mortality rate and a lower hospitalization rate for bleeding complications than those treated outside a hemophilia treatment centre.
Economic Benefits of Comprehensive Hemophilia Care – Japanese
Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese 包括的血友病医療を受けている患者は、血友病治療センター以外の医療機関で治療を受けた患者よりも死亡率が低く、出血の合併症による入院率が低くなっています。