What are fibrinogen disorders?
This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of fibrinogen disorders, including afibrinogenemia, hypofibrinogenemia, dysfibrinogenemia and hypodysfibrinogenemia. This publication was created in collaboration with the International Fibrinogen Physician and Patients Association. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific […]
What are Rare Clotting Factor Deficiencies?
Also Available In: Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of rare coagulation factor deficiencies.
What is von Willebrand Disease? – Sinhala
This edition is available in: English, Spanish, French The previous edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of von Willebrand disease (VWD). This is not an official WFH translation. This resource has been translated with permission by a WFH […]
What are Inherited Platelet Function Disorders?
This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of inherited platelet function disorders, including Bernard-Soulier syndrome, Glanzmann Thrombasthenia, and platelet granule disorders.
What is von Willebrand Disease?
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms, and management of von Willebrand disease (VWD).
What is Hemophilia?
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following language, with permission from the WFH, by NMOs: Amharic, Setswana This patient handbook contains basic information about the inheritance, symptoms, and management of hemophilia.
Women and girls with hemophilia
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]
What is gene therapy?
This patient handbook contains basic information about gene therapy for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any […]
Clinical trials for hemophilia
This handbook contains basic information about clinical trials for hemophilia. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, […]
What are Inhibitors?
The previous edition of this resource is also available in: Japanese This patient handbook contains basic information about inhibitors, the most serious complication of hemophilia.
What is Prophylaxis?
The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Setswana This patient handbook contains basic information about prophylaxis, the regular infusion of clotting factor concentrates in order to prevent bleeding. Prophylaxis is the goal of treatment for people with severe hemophilia, allowing […]
Carriers and Women with Hemophilia – Traditional Chinese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission […]