Hemophilia organization development

WFH Guidelines for NMO Capacity Development

The WFH Guidelines for NMO Capacity Development were created to provide clear benchmarks and a framework for regular assessments to support NMOs in developing their capacities based on best practices in key organizational development areas. The guidelines offer a systematic and participatory approach to organizational capacity development based on a framework for capacity development. It […]

Hemophilia Societies: Challenges and Development

Outlines the common challenges faced by hemophilia societies at various stages of development and offers practical solutions to help these organizations meet the needs of people with bleeding disorders.

Action Planning

An effective action plan helps organizations, and charitable organizations in particular, achieve results: monitor progress, maintain control, give people responsibility, strengthen accountability, and build greater teamwork through a sense of involvement.

Media Relations

Hemophilia organizations may not have the resources to hire a communications professional or fund an ambitious communications and media strategy. However, all can benefit from forming a relationship with the local and perhaps even national media.

Group Dynamics and Team Building

An overview of the theories and techniques related to group dynamics and team building.  Includes a description of the stages of team development, suggestions for achieving group consensus, and instructions for facilitating two team-building activities.

Developing and Sustaining an Effective Lobbying Campaign

A hemophilia organization can advocate for change with doctors, hospitals, health authorities, government officials, or politicians. This publication outlines the various steps in putting together an integrated lobbying strategy.

Good Governance

Not-for-profit organizations like hemophilia organizations need to perform to a very high professional level in order to meet the standards set by governments, regulators, industry, and others with whom they associate.


Raising funds requires careful research and detailed planning, as well as creativity and good business practices. This publication is intended to help volunteers and staff of hemophilia societies support their work through fundraising.

Long-Term Planning for Leadership Change

Today’s leaders are extremely motivated and united in their commitment to improving hemophilia treatment and care. But what will happen when these leaders retire? This monograph was written to help hemophilia organizations prepare for the future.

Making Your Case Effectively: A Guide to Government Relations

Hemophilia societies work with governments and health authorities to raise the level of care so that people with hemophilia can live healthy lives. This monograph provides organizations with some practical guidance to improve the effectiveness of government relations.

Recruiting and Retaining Volunteers

Describes the steps hemophilia organizations can take to attract volunteers, keep them motivated, and evaluate their volunteer program. Includes three forms that may be useful at the recruitment stage to ensure clarity of expectations between the volunteer and the organization.