This publication aims to help patient organizations develop an understanding of health economics and advocate on issues relating to the economics of hemophilia care.
An effective action plan helps organizations, and charitable organizations in particular, achieve results: monitor progress, maintain control, give people responsibility, strengthen accountability, and build greater teamwork through a sense of involvement.
Hemophilia organizations may not have the resources to hire a communications professional or fund an ambitious communications and media strategy. However, all can benefit from forming a relationship with the local and perhaps even national media.
An overview of the theories and techniques related to group dynamics and team building. Includes a description of the stages of team development, suggestions for achieving group consensus, and instructions for facilitating two team-building activities.
Not-for-profit organizations like hemophilia organizations need to perform to a very high professional level in order to meet the standards set by governments, regulators, industry, and others with whom they associate.
Raising funds requires careful research and detailed planning, as well as creativity and good business practices. This publication is intended to help volunteers and staff of hemophilia societies support their work through fundraising.
Today’s leaders are extremely motivated and united in their commitment to improving hemophilia treatment and care. But what will happen when these leaders retire? This monograph was written to help hemophilia organizations prepare for the future.
Hemophilia societies work with governments and health authorities to raise the level of care so that people with hemophilia can live healthy lives. This monograph provides organizations with some practical guidance to improve the effectiveness of government relations.
Describes the steps hemophilia organizations can take to attract volunteers, keep them motivated, and evaluate their volunteer program. Includes three forms that may be useful at the recruitment stage to ensure clarity of expectations between the volunteer and the organization.