Year: 2022
Language: English
Author(s): World Federation of Hemophilia
Format: Congress recordings
In these sessions from the WFH 2022 World Congress, listen to Kate Khair, Luke Pembroke, Louis Marlow, Andrew Selvaggi, Robert Cooper, Simon Fletcher, Sarah O’Brien, Ming Lim, Brittany Lee-Acton, Carrie Arnold, Rick Waines, Zander Masser, Brian O’Mahony, Barbara Konkle, Adolfo Llinas, Tyler Buckner, Nathalie Roussel, Valérie-Anne Chantrain and Bojan Pirnat address current multidiscilinary topics in bleeding disorders.
The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.
The WFH does not promote any particular pharmaceutical product and any mention of any commercial brand in this presentation is strictly for educational purposes.
In this session from the WFH 2022 World Congress, Kate Khair (United Kingdom), Luke Pembroke (United Kingdom), Louis Marlow (United Kingdom) and Andrew Selvaggi (Australia) discuss life with hemophilia after gene therapy, and life with hemophilia with fitusiran and emicizumab.
In this session from the WFH 2022 World Congress, Kate Khair (United Kingdom), Luke Pembroke (United Kingdom), Simon Fletcher (United Kingdom), Sarah O’Brien (United States) and Ming Lim (United States) discuss the impact of pain, joint bleeds, decreased mobility, and quality of life can be very different with factor replacement therapy. The objective of this session is to understand the changing dynamic of living with sever hemophilia after treatment with innovative therapies.
In this plenary from the WFH 2022 World Congress, writer/executive producer Robert Cooper (Canada) recounts the road to getting the series made and shares the stories and incredible people that inspired it.
In this session from the WFH 2022 World Congress, Robert Cooper (Canada), Brittany Lee-Acton (Canada), Carrie Arnold (Canada), Rick Waines (Canada) and Zander Masser (Canada) discuss the following:
This session will demonstrate how the role memorial art can play in ensuring our multi-disciplinary teams understand the impacts of the crisis on the survivors and the caregivers of those we lost in the bleeding disorders community.
In this plenary from the WFH 2022 World Congress, Brian O’Mahony (Ireland) discusses how COVID-19 has had a very significant impact on the entire global community for the past 2 years.
In this session from the WFH 2022 World Congress, Barbara Konkle (United States), Adolfo Llinas (Colombia), Tyler Buckner (United States), Nathalie Roussel (Belgium), Valérie-Anne Chantrain (Belgium) and Bojan Pirnat (Canada) discuss the challenges of evaluating and managing pain in persons with a bleeding disorder from a patient-centered perspective, as well as from a broad biopsychosocial perspective and the impact pain has on sleep and quality of life.
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