
Overcoming Challenges in Hemophilia Care
This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of
Year: 2015
Language: English
This resource is also available in: Spanish
Author(s): Michelle Alabek, Richa Mohan, Marianna H. Raia
Genetic counselling constitutes an integral part of the comprehensive hemophilia care team providing people with hemophilia, and their families, clinical and scientific information, supporting individuals through the decision-making process regarding prenatal and carrier testing, and offering individualized psychosocial assessment and counselling before and after genetic testing. This resource introduces genetic counsellors, the genetic counselling process, and a framework for practice. Factors that influence genetic counselling and challenges that arise in a resource-poor setting are discussed.

This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of

This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of

This booklet contains basic information about psychosocial aspects of rare coagulation factor deficiencies. This resource was developed by members of

Welcome to this exciting project, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied

Welcome to this exciting webinar, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied

Psychosocial support is an important part of comprehensive care for people with hemophilia. The aim of this monograph is to