von Willebrand disease | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Jill Johnsen, Michael Laffan & Jameela Sathar discuss von Willebrand disease (VWD), the most common inherited bleeding disorder. This session provides an overview of VWD diagnosis and treatment, special considerations in treating women with VWD, and current genomic approaches to VWD. The WFH does not engage […]

Carriers and Women with Hemophilia – Traditional Chinese

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese, Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with […]

Carriers and Women with Hemophilia – Setswana

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese, Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with […]

Women and girls with hemophilia | Virtual Summit 2020

In this session from the WFH 2020 Virtual Summit, Roseline d’Oiron, Sarah O’Brien and Andra James discuss issues on women and girls with hemophilia (WGWH), including female carriers with low levels of FVIII or FIX and/or bleeding experiences. The key points that will be covered are the importance of early diagnosis during childhood of affected […]

Management of Women with VWD

In the Sunday afternoon joint Laboratory Sciences and VWD Professional Development Workshop, Andra H. James explains the unique issues in the management of women with von Willebrand Disease (VWD). This talk was part of the joint Laboratory Sciences and VWD Professional Development Workshop. See below for the other talks in this workshop:

Carriers and Women with Hemophilia

Also Available In: Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Many carriers of hemophilia also experience symptoms of the disorder. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder.

Carriers and Women with Hemophilia – Japanese

Also Available In: English, Spanish, French, Arabic, Russian, Simplified Chinese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese 多くの血友病保因者も血友病の症状を経験します。なかには何年も出血性疾患と診断されたり疑われたりすることのないまま暮らしている女性もいます。

Von Willebrand Disease

This review presents an overview of the prevalence, history, different types, symptoms, diagnostic tests, and treatment and management of von Willebrand disease (VWD). It features an extensive annotated bibliography of related resources.

Symptomatic Carriers of Hemophilia

Some carriers of hemophilia experience symptoms comparable to those seen in men with mild hemophilia. This monograph describes common bleeding problems in symptomatic carriers and strategies to prevent and treat them.