Women and girls with hemophilia
The previous edition is also available in: Japanese The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Hemophilia is a rare bleeding disorder. For many years, people believed that only men and boys could have symptoms of hemophilia. We now know […]
von Willebrand disease | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Jill Johnsen, Michael Laffan & Jameela Sathar discuss von Willebrand disease (VWD), the most common inherited bleeding disorder. This session provides an overview of VWD diagnosis and treatment, special considerations in treating women with VWD, and current genomic approaches to VWD. The WFH does not engage […]
Genetic Counseling and Psychosocial Support for Carriers | Workshop for Psychosocial Professionals
This module was presented by Silvina Graña at the Virtual Workshop for Psychosocial Professionals in Central and South America on April 9, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in Spanish. The WFH does not engage in the practice of medicine and under no circumstances […]
Carriers and Women with Hemophilia – Traditional Chinese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana This is not an official WFH translation. This resource has been translated with permission […]
Carriers and Women with Hemophilia – Setswana
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Traditional Chinese This is not an official WFH translation. This resource has been translated with permission […]
Women and girls with hemophilia | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Roseline d’Oiron, Sarah O’Brien and Andra James discuss issues on women and girls with hemophilia (WGWH), including female carriers with low levels of FVIII or FIX and/or bleeding experiences. The key points that will be covered are the importance of early diagnosis during childhood of affected […]
Management of Women with VWD
In the Sunday afternoon joint Laboratory Sciences and VWD Professional Development Workshop, Andra H. James explains the unique issues in the management of women with von Willebrand Disease (VWD). This talk was part of the joint Laboratory Sciences and VWD Professional Development Workshop. See below for the other talks in this workshop:
Carriers and Women with Hemophilia – Japanese
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Setswana, Traditional Chinese 多くの血友病保因者も血友病の症状を経験します。なかには何年も出血性疾患と診断されたり疑われたりすることのないまま暮らしている女性もいます。
Symptomatic Carriers of Hemophilia
Some carriers of hemophilia experience symptoms comparable to those seen in men with mild hemophilia. This monograph describes common bleeding problems in symptomatic carriers and strategies to prevent and treat them.
The Basic Science, Diagnosis, and Clinical Management of von Willebrand Disease
Offers a detailed review of the basic science, clinical features, and classification of the various forms of von Willebrand Disease, as well as its diagnosis and management.