Free papers: Late breaking 2 | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Saliou Diop, Ampaiwan Chuansumrit, Silvia Riva and Ahmad Tarawah discuss: “Connection between a local Registry and World Bleeding Disorders Registry: Automatic hemophilia patients’ data transfer” “Psychological status of older patients with hemophilia: results from the multicenter S+PHERA study” “Prevalence of bleeding symptoms among young adults in […]
Key Concepts and Principles of Care for Bleeding Disorders | July 28, 2021
Listen to this back-to-basics 90-minute webinar, presented on July 28, 2021, which offers members of NMOs the opportunity to get a refresher on the key concepts and principles of care for inherited bleeding disorders. The webinar program also covers foundational knowledge on topics relevant for NMO members and advocates. This webinar was chaired by Carlos […]
Report on the Annual Global Survey 2017
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2016
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2015
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2014
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2013
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2012
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2011
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders throughout the world.
Report on the Annual Global Survey 2010
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.
A Study of Variations in the Reported Hemophilia B Prevalence Around the World
An analysis of the global prevalence of hemophilia B, based in large part on the WFH’s Global Survey Data. Prevalence data are extremely valuable information for the planning efforts of national healthcare agencies in setting priorities and allocating resources for the treatment of hemophilia B.
Report on the Annual Global Survey 2009
Compiled annually, the Annual Global Survey (AGS) provides demographic and other data on people with hemophilia, von Willebrand disease , other rare factor deficiencies, and inherited platelet disorders throughout the world.