Glenn Pierce and Steve Pipe discuss the latest updates on Gene Therapy for hemophilia | July 2021
The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021
Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]
WFH Webinar: Treatment Options for Hemophilia in the Developing World
On December 16, 2016, the WFH in collaboration with the ISTH, recorded a live interactive webinar on the challenges and opportunities of treatment options for hemophilia in the developing world, now available for viewing here. Introduced by Marijke van den Berg, Rolf Ljung opened with a summary of the lessons learned from decades of experience […]
Compendium of Assessment Tools
Hemophilia is a rare disease and its management is multi-faceted. With advances in medical care including prophylactic factor replacement, the need for outcome assessment tools that are valid, reliable, sensitive to change, and predictive has become increasingly apparent. Physical status (joint health), functional ability, bleeding symptoms, and quality of life can now be measured using […]