WFH Humanitarian Aid program: Past and future | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Assad Haffar, Megan Adediran, Kibet Shikuku, Glenn Pierce, Alain Baumann, Bill Sibold, Guido Oelkers, Iqbal Mufti, Klaus Marten, Lauren Syring & Antti Kourula discuss the WFH Humanitarian Aid Program, which improves access to care and treatment by providing much-needed support for people with inherited bleeding disorders […]
WFH Educational: Treatment choice in an era of change | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Glenn Pierce, Johnny Mahlangu, David Page & Brian O’Mahony explore the patient and provider perceptions on treatment choices: how does each make a choice and process the risk-benefit analysis. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Psychosocial: New communication strategies for the bleeding disorders community | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Ed Kuebler, Silvina Grana, Diane Standish, David Silva & Patricia Cabre will explore challenges that affect communication between Hemophilia Treatment Centre (HTC) team members and the patients and families whom they serve. Providers want their patients to understand, but sometimes, it seems that the message does […]
Opening plenary | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit is the official opening of the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community. The WFH President, Mr. Alain Weill, will present welcoming remarks, along with the WFH VP (Medical), Dr. Glenn Pierce, and the WFH’s CEO, Mr. Alain Baumann, launching the first and exciting new […]
Psychosocial: Training and career guidance for youth with bleeding disorders | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Susan Cutter, Claude Bartholomew, Annie Bole, Tony Roberts & Santosh Manivannan will explore the ways in which social workers can assist youth with bleeding disorders explore careers and develop skills that will prepare them for employment. The presentation will also address the economic disparity in countries […]
Free papers: Late breaking 2 | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Saliou Diop, Ampaiwan Chuansumrit, Silvia Riva and Ahmad Tarawah discuss: “Connection between a local Registry and World Bleeding Disorders Registry: Automatic hemophilia patients’ data transfer” “Psychological status of older patients with hemophilia: results from the multicenter S+PHERA study” “Prevalence of bleeding symptoms among young adults in […]