What does quality of life mean to you? Living with (an inherited) bleeding disorder in a changing world | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Deon York, Nathalie Roussel, Cathy Harrison, Lauren Phillips & Randall Curtis discuss what quality of life means from the perspective of a person living with a bleeding disorder. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for […]
Substitution therapy | Virtual Summit 2020
Despite significant paradigm shifts in the medical management of hemophilia A with inhibitors and the expanding use of novel non-factor therapies, FVIII-based immune tolerance induction (ITI) is still the only effective means to inhibitor eradication. With the recently introduced Atlanta protocol, emicizumab prophylaxis is given in combination with 50-100 IU/kg FVIII three times a week. […]
Physical activity for joint health and wellness | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Paul McLaughlin, Adolfo Llinas, Pamela Narayan & Chavez Edgecombe discuss how exercising joints and muscles can reduce spontaneous bleeding in the long term. This session will aim to demonstrate easy and practical methods in musculoskeletal care from orthopedist, physiotherapist and patient perspectives, including bone health without […]
Nurses: Unmet areas of evidence-based nursing in bleeding disorders care | Virtual Summit 2020
As the role of hemophilia nurses continues to expand globally, they are practicing at ever-more advanced levels, delivering entirely nurse-led care. This session from the WFH 2020 Virtual Summit with Kate Khair, Chris Guelcher, Debra Pollard, Kelly Tickle & Mahmoud Abu Riash, will cover best evidence-based practices and will also look at how the role […]
Nurses: Emerging hemophilia nursing skills | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit, with Kate Khair, Amber Federizo, Michelle Witkop, Regina Butler & Cathy Harrison, will cover best evidence-based practices and will also look at how the role of nurses in delivering care will change dramatically over the coming years. The WFH does not engage in the practice of medicine […]
Musculoskeletal: Synovitis & synovectomy | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit with Sébastien Lobet, Eline van Bergen, Sylvia Thomas & Mauricio Silva will address the current understanding of synovitis and its treatment options, with specific emphasis on chemical and radioactive synovectomy, surgical options, rehabilitation, and non-surgical management. The WFH does not engage in the practice of medicine and […]
Multidisciplinary plenary: Quality of life | Virtual Summit 2020
This plenary from the WFH 2020 Virtual Summit seeks to explore and explain the role of pain. Deon York, Lorimer Moseley and Dr. Bajan Singh will explore the new understanding of pain, and how that understanding can change one’s perspectives of dealing with pain, as well as an overview of what sleep is, how it […]
Musculoskeletal: Hot topic debates | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit will feature three controversial topics debated by experts in their field. Hortensia De la Corte Rodriguez, Annette von Drygalski, Mauricio Silva, David Dalstrom, Janaina Bosso and David Stephensen will discuss point-of-care ultrasound (POCUS) image capture by patients, ankle arthrodesis vs. arthroplasty, and HJHS vs. functional measurement. The […]
Management of comorbidities in bleeding disorders | Virtual Summit 2020
In this session from WFH 2020 Virtual Summit, Mike Makris, Pal Andre Holme and Christine Kempton explore the incidence and management of the comorbidities of the aging people with hemophilia, with a focus on cardiovascular disease and osteoporosis. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Free papers: Late breaking 2 | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Saliou Diop, Ampaiwan Chuansumrit, Silvia Riva and Ahmad Tarawah discuss: “Connection between a local Registry and World Bleeding Disorders Registry: Automatic hemophilia patients’ data transfer” “Psychological status of older patients with hemophilia: results from the multicenter S+PHERA study” “Prevalence of bleeding symptoms among young adults in […]
Healthy living | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Hariyati Shahrima, Richa Mohan, Sabrina Farina and Mina Nguyen-Driver discuss nutrition, fitness, sleep, self-esteem, ageing and sexuality. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, […]
General plenary: Managing COVID-19 and bleeding disorders | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit was developed as an educational response to the COVID-19 pandemic for the global bleeding disorders community. Speakers Radoslaw Kaczmarek, Flora Peyvandi, Cedric Hermans and Mark Skinner discuss the pathophysiology and clinical manifestations of COVID-19, practical advice on the management of COVID-19, and safety and supply of plasma […]