Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | October 13 2022
Listen to this 2-hour webinar presented on October 13, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Susan Cutter (U.S.A.), Cesar Haddad (Lebanon), Marlène Beijevelt (The Netherlands), Miguel Escobar (U.S.A.), Sukesh Nair (India) and Annette von Drygalski (U.S.A.) presented practical information on bleeding disorders, including […]
PACT Advocacy Academy: Towards better access to care and treatment globally | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Donna Coffin, Salome Mekhuzla, Carlos Safadi Marquez, John Gershman and Mathieu Jackson present an overview of the WFH’s Path to Access to Care and Treatment (PACT) Program and launch the new PACT Advocacy Academy – an 8-month training course for NMO leaders and advocates developed […]
Models of care delivery today and in the post-pandemic world | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Dan Hart, Margareth Ozelo, Hatoon Mohammed and Daniel Anibal Garcia discuss how the pandemic has brought many challenges to the existing models of organization and delivery of care. This session highlights the opportunities that also arise in the post-pandemic era. Presenters will share different case […]
Effective strategies to improve access to treatment and care | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Dawn Rotellini, Bradley Rayner, Declan Noone and Durhane Wong-Rieger, will address the importance of data analysis to inform policy decisions, building alliances with patient groups and other effective strategies to improve access to treatment and care for people with bleeding disorders. Emphasis will be made […]
Economics of care and access to therapies | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Dawn Rotellini, Mark Skinner, Jamie O’Hara and David Page will present an overview of the current state of access to therapies for people with bleeding disorders. Speakers will also highlight the importance of patient-relevant data on treatment choices and health policy decision-making. Session will include […]
Current landscape of access to treatment & care globally | Global Policy and Access Summit 2021
How is the pandemic impacting global healthcare systems around the world? What will the “new normal” be? In this opening session from the Global Policy and Access Summit, Cesar Garrido (WFH President) and Glenn Pierce, MD (WFH VP Medical) will address the effects of the pandemic on WFH’s vision of Treatment for All, as well […]
Collaborating to increase access: Perspectives from different stakeholders | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Glenn Pierce, MD (WFH VP Medical), will moderate a panel discussion with Megan Adediran, Emna Gouider & Latifa Belakhel, bringing together perspectives from a patient organization leader, a healthcare provider and a national government representative. This discussion will highlight potential areas of collaboration between stakeholders […]
Recommendations and key take aways | Global Policy and Access Summit 2021
In this final session from the Global Policy and Access Summit, Salome Mekhuzla, David Page, Mukesh Garodia and Antonio Gomez Cavallini discuss how the global bleeding disorders community is sustaining and advancing care today and in the post-pandemic world. They will also cover the strategies that have proven successful, and what contributions various stakeholders bring […]
Procurement models | Global Policy and Access Summit 2021
In this session from the Global Policy and Access Summit, Mukesh Garodia, Brian O’Mahony, Yuri Zhulyov, Margarita Elizabeth Garcia Gonzalez and Brian Fitzgerald give an overview of various procurement models for hemophilia and other inherited bleeding disorders therapeutic products, present key principles in setting up an efficient national procurement mechanism and highlight the importance of […]
International Women’s Day webinar | March 8 2022
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
WFH Humanitarian Aid program: Past and future | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Assad Haffar, Megan Adediran, Kibet Shikuku, Glenn Pierce, Alain Baumann, Bill Sibold, Guido Oelkers, Iqbal Mufti, Klaus Marten, Lauren Syring & Antti Kourula discuss the WFH Humanitarian Aid Program, which improves access to care and treatment by providing much-needed support for people with inherited bleeding disorders […]
What does quality of life mean to you? Living with (an inherited) bleeding disorder in a changing world | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Deon York, Nathalie Roussel, Cathy Harrison, Lauren Phillips & Randall Curtis discuss what quality of life means from the perspective of a person living with a bleeding disorder. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for […]