Publishing in the Haemophilia Journal: Opportunities and challenges | WFH World Congress 2024
Publishing in Haemophilia—the official journal of the WFH—presents both opportunities and challenges for researchers and practitioners in the field. While it offers a platform to disseminate new findings and contribute to the scientific community, there are hurdles to be overcome such as rigorous peer reviews and the need to meet specific publication standards. Through interactive […]
von Willebrand Disease and reproductive tract bleeding, pregnancy, and postpartum bleeding | March 8, 2024
In celebration of International Women’s Day, the WFH hosted an educational webinar. The event centered around reproductive tract bleeding, pregnancy, and postpartum bleeding in women with von Willebrand Disease (VWD). Attendees had the opportunity to learn from and pose questions to key experts in the field, as well as to gain insights into the experiences […]
WFH Shared Decision Making for Hemophilia Webinar Series
The World Federation of Hemophilia (WFH) Shared decision-making (SDM) tool helps clinicians and people with hemophilia work together to make treatment decisions based on clinical evidence that balances risks and expected outcomes with patient preferences and values. Listen to three free 90-minute webinars covering the different hemophilia treatments and the applications of this important tool […]
Nurses Committee Webinars: how to write an abstract, prepare a poster, and present using PowerPoint
Welcome to this exciting project, a collaborative effort between the Nurses Committees of the European Association for Haemophilia and Allied Disorders (EAHAD), the International Society on Thrombosis and Hemostasis (ISTH), and the World Federation of Hemophilia (WFH). We worked together to increase the active participation of the nurses in bleeding disorder care during congresses. This […]
WFH Webinar on von Willebrand Disease | September 21, 2023
Listen to this 90-minute webinar presented on September 21, 2023 to learn about von Willebrand disease (VWD) in low-resource settings. Dr Michelle Lavin (Ireland), Dr Claudia Khayat (Lebanon), Dr Jecko Thachil (United Kingdom), Dr Augusto Federici (Italy) and Emily Ayoub (Canada) present global inequities in VWD registrations, survey results on VWD in the east Mediterranean […]
Hemostatic Rebalancing Therapy
This video gives a quick introduction to hemostatic rebalancing therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific […]
Gene Therapy for Hemophilia
This video gives a quick introduction to gene therapy for hemophilia. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a […]
Extended Half-Life (EHL) Factor Therapy
This video gives a quick introduction to extended half-life (EHL) clotting factor replacement therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
Bispecific Antibody Therapy
This video gives a quick introduction to bispecific antibody therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific […]
Standard Half-Life (SHL) Factor Therapy
This video gives a quick introduction to standard half-life (SHL) clotting factor replacement therapy. Learn more about different treatment options for hemophilia with the World Federation of Hemophilia Shared Decision Making tool! The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or […]
Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in treatment and care | March 8, 2023
This 60-minute webinar explores the theme of “Women and Girls with Bleeding Disorders and Reproductive Health: Disparities in Treatment and Care” and covers topics like fertility challenges faced by WGBD, overlooked issues that have significant health impact for WGBDs and management of WGBDs in a multidisciplinary setting. Speakers included Dawn Rotellini (U.S.A), Maureen Baldwin, MD […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 15 2022
Listen to this 2-hour webinar presented on December 15, 2022, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Patricia Cabré (Spain), Adolfo Llinas (Colombia), Luigi Solimeno (Italy), Radoslaw Kaczmarek (U.S.A.), Catherine Hayward (Canada), and Andra James (U.S.A.) presented practical information on bleeding disorders, including resilience and […]