
WFH expert panel discusses WHO EML and EMLc update
The global bleeding disorders community reached a major milestone in 2025, as the World Health Organization updated both its Essential
Year: 2015
Language: English
Author(s): World Federation of Hemophilia
The strength of the WFH and of its national member organizations lies in the commitment of inspiring leaders who work every day towards advancing the common vision of Treatment for All. However, many patient organizations struggle to engage young adults within their communities and there is a need to inspire more active participation.
Young Voices is a series of articles designed to help identify; mobilize; and empower future leaders to participate in the global conversation and effect positive change in their communities.
In December, 2013, the WFH Advocacy in Action program held its ninth workshop in Montreal, Canada. Entitled “Developing youth leaders to advocate effectively”, the workshop brought together 12 youth delegates from 12 countries, with a further 29 delegates participating via the online live broadcast. The workshop empowered youth with knowledge, abilities and skills to design, plan and carry out advocacy campaigns/strategies and to lead effectively. Click the thumbnails below to view videos in which two of the delegates, Jenna Lovell from Australia and Premroop Alva from India, present the inspiring successes of their youth groups.
Developing youth leaders to advocate effectively – Jenna Lovell, Australia
Developing youth leaders to advocate effectively – Premroop Alva, India

The global bleeding disorders community reached a major milestone in 2025, as the World Health Organization updated both its Essential
The presentations and discussions of the third edition of the WFH Global Policy and Access Summit (GPAS) center around increasing
The presentations and discussions of the second edition of the WFH Global Policy and Access Summit (GPAS) center around improving
In these sessions from the WFH 2022 World Congress, listen to Kate Khair, Luke Pembroke, Louis Marlow, Andrew Selvaggi, Robert

In this session from the Global Policy and Access Summit, Donna Coffin, Salome Mekhuzla, Carlos Safadi Marquez, John Gershman and

In this session from the Global Policy and Access Summit, Dan Hart, Margareth Ozelo, Hatoon Mohammed and Daniel Anibal Garcia